Hosted by The Aplastic Anaemia Trust, PNH Support, DC Action, Fanconi Hope, SDS UK, and CAN. · 🇺🇸 US · EN · 6 episodes
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What’s it like living with a rare blood or bone marrow disorder? Or parenting a child who is? This brand new podcast invites people living with these conditions to share their perspectives and advice for those facing similar challenges. How do you carry on feeling positive when someone you know dies as a result of the same condition? How do you explain why your child can’t go to a party? How do you speak up at the hospital when you think doctors need to do something different? Stories of strength and real, practical advice for super rare people and families. ----------------------------------More info & support at: theaat.orgpnhuk.orgdcaction.orgtogetherwecan.ukfanconihope.orgsdsuk.orgsuper-rare.orgThe Rare Voices podcast is a joint project between The Aplastic Anaemia Trust, PNH Support, DC Action (supporting people with Dyskeratosis Congenita and Telomere Biology Disorders), Fanconi Hope, SDS UK (supporting people with Shwachman Diamond Syndrome) and Congenital Anaemia N
The Aplastic Anaemia Trust, PNH Support, DC Action, Fanconi Hope, SDS UK, and CAN. hosts Rare Voices Podcast, a health show with 6 episodes published.
This final episode looks at the lack of public awareness about rare bone marrow conditions and the challenges in getting people to understand them. We highlight the work of the collective charities to raise awareness. Co
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When conditions are rare, even healthcare professionals fail to recognise them. This episode discusses some of the struggles that people living with rare blood disorders can experience when trying to get medical care. Co
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Loneliness is rife among people living with rare blood disorders. But there’s a whole community of people out there who are willing to connect. How are people with similar conditions finding each other? Conditions mentio
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Around two-thirds of people living directly or indirectly with a rare bone marrow condition feel they need more psychological support. Why is it important, how does it help and what resources are available? Conditions me
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For parents of those with rare bone marrow conditions, life can be exceedingly stressful. How can you manage this anxiety and support their child well? Conditions mentioned in this episode: Fanconi Anaemia, Shwachman Dia
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What is it like living with a rare blood or bone marrow disorder? In the first episode of this series, we discuss what it’s like to live with a rare condition day-to-day. Conditions mentioned in this episode: Sickle cell
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Rare Voices Podcast is hosted by The Aplastic Anaemia Trust, PNH Support, DC Action, Fanconi Hope, SDS UK, and CAN.. The show is categorised under health (fitness) and has published 6 episodes.
Rare Voices Podcast has published 6 episodes.
Rare Voices Podcast regularly covers health, fitness, mental. It sits in the health category, with a fitness focus.
Rare Voices Podcast is accessible for guests with genuine health expertise. A personalised, episode-aware pitch will still outperform a generic one every time.
Rare Voices Podcast hasn't explicitly signalled guest openness in recent episodes. That doesn't rule out pitching. your hook just needs to be especially compelling and relevant to their recent content.
Episodes of Rare Voices Podcast average 19 minutes. a focused format where a clear narrative arc and tight preparation matter most.
Our data rates Rare Voices Podcast's guest bar at 80/100 (Premium tier). Established thought leaders with verified media credentials. Sign in to PitchCentric to see how your own Pod Score compares against this show.
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