Jul 16, 202523 minS0
Presented by psychologist Marcia Braden PhD, this overview lays the foundations for understanding and supporting the neurological underpinnings of behavioural presentations associated with Fragile X syndrome. This was...
news
SMA Australia
Hosted by Alba Prime · news · EN
About this Podcast:
Spinal Muscular Atrophy (SMA) is a rare genetic muscle wasting disease that is the childhood version of motor neurone disease. If you are newly diagnosed, or have just come across our page for the first time, we urge you to get involved, within the SMA community here in Australia. We would love to hear from you and are happy to support you on your journey. We acknowledge that each person is different, and we endeavour to assist you and your requirements.
Pitch Analysis
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Contact path
Public web form
Booking probability
27%
Guest openness
Selective
80/100
Required Score
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What is SMA Australia about?
Spinal Muscular Atrophy (SMA) is a rare genetic muscle wasting disease that is the childhood version of motor neurone disease. If you are newly diagnosed, or have just come across our page for the first time, we urge you to get involved, within the SMA community here in Australia.
Who hosts SMA Australia?
SMA Australia is hosted by Alba Prime. The show has published 22 episodes to date.
What has SMA Australia covered recently?
Recent episodes include "Understanding the neurobiology of Fragile X syndrome and behaviours (Dr Marcia Braden)" (16 July 2025, 23 minutes), "The Benefits of Intensive Therapy (Webinar)" (23 May 2022, 55 minutes), and "Field Studies from the NSW Newborn Screening Pilot - Webinar" (11 November 2021, 44 minutes).
How often does SMA Australia publish?
SMA Australia publishes roughly every few months, with episodes averaging 43 minutes across 22 episodes.
How hard is it to get booked on SMA Australia?
Booking probability for SMA Australia is 27%, and the host is rated Selective on guests. SMA Australia requires a Pod Score of 80 or higher. SMA Australia's contact route on record: public web form.
Who should pitch SMA Australia?
The strongest fits for SMA Australia are Health & Wellness Services. SMA Australia has a news audience.
About the host
Alba Prime hosts SMA Australia, a news podcast with 22 episodes published.
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Recent episodes
Our AI reads these to draft pitches. Use them as grounding for a pitch that cites a real guest and a specific topic.
Nov 11, 202144 minS0
SMA Australia
What About Me? Accessing Treatments for Adults
Oct 10, 20211h 28mS0We know the non-recommendation of both Nusinursen (Spinraza) and Evrysdi (Risdiplam) for the adult community has left many feeling deflated. We want to acknowledge this and also reassure you; we haven’t stopped in our...
SMA Australia
Newborn Screening Advocacy Next Steps (Webinar)
Aug 19, 202158 minS0Now that Newborn Screening (NBS) has been recommended, we turn our focus to the Australian states and territories, as this is where NBS gains funding. Each state has to allocate in their budget to pay for testing.<br...
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SMA Australia
Why do I need to see an adult Neurologist
Jun 28, 20211h 29mS0Why do I need to see an adult Neurologist with Lauren Sanders
- May 5, 202150 minS0
The Importance of a patient registry and why to participate<br />Guest: Robin Forbes<br /><br />Visit http://smaaustralia.org.au for more information
SMA Australia
Getting involved in sports with a disability
Apr 21, 202141 minS0In this episode, we speak to Australian Paralympian Champion, Daniel Michel about getting involved in sports with a disability.
- Oct 23, 202052 minS0
SMA Australia
PBAC Processes and Consumer Input
Sep 21, 20201h 3mS0Jo Watson shares information about the process behind PBAC and Consumer Input
SMA Australia
Fiona Tolich
Sep 4, 201912 minS0Fiona Tolich<br /><br />“My ultimate goal is to get access to treatment. New Zealand is the second lowest country in all of the OECD countries to get access to the expanded access program. We will keep fighting. My...
SMA Australia
James Ian
Aug 19, 201915 minS0James Ian<br /><br />“Music for sure saved me...and helped me break out of my shell, and started writing songs that would resonate me overcoming challenges.” - James Ian<br /><br />In this episode, James talks about his...
SMA Australia
Sook Yee
Aug 9, 201914 minS0Sook Yee<br /><br />"My son started painting when he's 2 years old, and we use that as a therapy." --Sook Yee.<br /><br />Sook Yee is a Malaysian mom whose son has SMA. Doctors believed her son had only one year to...
SMA Australia
Al Freedman
Aug 1, 201915 minS0Al Freedman<br /><br />“We’re lucky to have our kids to however long we have them, and that’s how I feel about my son… think about what our kids can do.” - Dr. Al Freedman<br /><br />Having a support system from friends...
SMA Australia
June 2019 Update
Jun 3, 201914 minS0Zolgensma drug by Avexis brought into Australia<br />Roche - https://www.roche.com/research_and_development/what_we_are_working_on/neuroscience/approaching-sma.htm<br />Parliament date to be announced, looks like some...
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