Oct 18, 20261h 7mS5
"Failure is not an option". Seth, Sarah and Eva provide their experiences and perspectives on growing up with early-onset FSHD and why (and how) they should be included in the therapeutic development and testing process.
business
MyFSHD
Hosted by Peter L Jones, PhD · business · EN
About this Podcast:
MyFSHD is about education and personal empowerment for the worldwide facioscapulohumeral muscular dystrophy (FSHD) community. Here we have discussions and commentary hosted by FSHD researcher Peter Jones, PhD, on many things of interest to the FSHD community. Learn about the science behind the different FSHD therapeutic approaches, FSHD pathology, family genetics and FSHD diagnostics. We will discuss upcoming clinical trials and what to look forward to. You will get to understand how you can be better prepared, become involved, and help contribute to defeating FSHD once and for all.
Pitch Analysis
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Contact path
Verified email
Booking probability
43%
Guest openness
Selective
80/100
Required Score
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Signup to Generate a PitchQuestions about MyFSHD
What is MyFSHD about?
MyFSHD is about education and personal empowerment for the worldwide facioscapulohumeral muscular dystrophy (FSHD) community. Here we have discussions and commentary hosted by FSHD researcher Peter Jones, PhD, on many things of interest to the FSHD community. Learn about the science behind the different FSHD therapeutic approaches, FSHD pathology, family genetics and FSHD diagnostics.
Who hosts MyFSHD?
MyFSHD is hosted by Peter L Jones, PhD. The show has published 117 episodes to date.
What has MyFSHD covered recently?
Recent episodes include "Continuing our discussion with Ambassadors of the Cure FSHD for All initiative" (18 October 2026, 67 minutes), "Understanding the Satellos drug going to clinic for FSHD" (1 October 2026, 63 minutes), and "FSHD Phase I/II clinical trial previews for Scholar Rock, Soufflé and Dyne." (20 September 2026, 81 minutes).
How often does MyFSHD publish?
MyFSHD publishes roughly monthly, with episodes averaging 83 minutes across 117 episodes.
How hard is it to get booked on MyFSHD?
Booking probability for MyFSHD is 43%, and the host is rated Selective on guests. MyFSHD requires a Pod Score of 80 or higher. MyFSHD's contact route on record: verified email.
Who should pitch MyFSHD?
The strongest fits for MyFSHD are Health & Wellness Services. MyFSHD has a business audience.
About the host
Peter L Jones, PhD hosts MyFSHD, a business podcast with 117 episodes published.
Verified host email: ████████@████.comSign in to unlock →
Recent episodes
Our AI reads these to draft pitches. Use them as grounding for a pitch that cites a real guest and a specific topic.
- Oct 1, 20261h 3mS5
"You're gonna need a bigger boat!" Today we discuss the third compound going to clinic emerging from Neil Camarta's "Shark Tank" meetings. This one from Satellos was designed to address the regeneration deficit in DMD...
- Sep 20, 20261h 21mS5
"If you want something bad, you have to fight for it. Step up you game, Scott. Break out the L-word". Today we discuss a little more on the Epicrispr clinical trial and preview the upcoming Scholar Rock, Soufflé and...
Episode #7
World FSHD Day 2026
Jun 21, 20261h 49mS5"It's not who I am underneath, but what I do that defines me." We celebrate World FSHD Day with those that are making a difference in the world (and our fathers -- Happy Father's Day!) and then discuss what we would...
- May 17, 20261h 57mS4
"I think the question we should be asking is, do you believe in this thing or not?" We discuss the value of MRI-informed muscle biopsies compared with uninformed biopsies, how we go about interpreting FSHD clinical...
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Episode #5
Reddit Q&A (part 2). No "A", a little "I". Peter and Brad finish up the line of Reddit questions.
May 9, 20262h 4mS4"I'm not bad. I'm just drawn that way." Today we finish up some questions on clinical trials, therapeutics, what may be in the future, and other random FSHD topics. Good times :)
- Mar 29, 20261h 9mS4
"Blue Horseshoe loves Anacott Steel." Today we cover recent clinical trial news in the FSHD space and delve a bit deeper into some topics from part 1 of our Reddit Q&A. **Updated version** The lowlight was Roche...
- Mar 27, 20261h 55mS4
"I am the eyes and ears of this institution, my friends." You asked, we (try to) answer your questions. Part 1 of 2. There is no song in this version due to copyright issues causing it to be removed for some of our...
- Jan 15, 202646 minS5
"So, Mr Tipton, how could it take you five minutes to cook your grits when it takes the entire grit-eating world twenty minutes?" We discuss the initial Epicrispr Biotech press release pertaining to their EPI-321 phase...
- Oct 25, 20251h 24mS4
"That's super frustrating. It just makes me wanna pick up whoever is standing closest to me and throw them through this window and out into the infinite abyss of nothingness!" Brad, our angry Dad, is back with some...
- Sep 14, 20251h 36mS4
"There's another old saying, Senator: Don't piss down my back and tell me it's raining." We know a lot of you don't have the time or interest in all the details so we packaged up the highlights of the gene therapy...
- Sep 6, 202546 minS4
"But did you bleed him? - Aesculapius says that bleeding is not a cure. It is only a way of proving that you are a physician at the expense of your patient." Finally, we discuss the EPI-321 epigenetic editing phase I/II...
Episode #15
Our scientific evaluation of and opinions on the EPI-321 publicly available preclinical data
Sep 6, 20252h 4mS4"Good morning, and in case I don't see ya, good afternoon, good evening, and good night!" We take our time to evaluate publicly available preclinical data for EPI-321 used to support the Epicrispr Biotechnology...
- Sep 6, 20251h 23mS4
"In the history of science, innovative concepts occasionally arise from sudden left-field inspiration." Here we make sure everyone is up to speed on the types of CRISPR inhibition for FSHD and FSHD epigenetics s that we...
Aug 17, 20251h 34mS4"...and by the time they figure out what went wrong, we'll be sitting on a beach, earning twenty percent." This is part 2 of our podcast series covering the important factors in successful gene therapy and introduces...
Aug 15, 20251h 20mS4"My friends are toys. I make them. It's a hobby. I'm a genetic designer." This is a two part podcast covering the important factors is successful gene therapy and introduces the knowledge gained from other neuromuscular...
Jul 30, 202542 minS4"You were seeking some information of some kind?" Continuing our discussion with our young FSHD advocates, asking and answering some questions.
Jul 28, 20251h 19mS4"And that would tell you what is obvious right now? That avoiding apple skins and pizza has no effect on this brutal disease?" Today we discuss the Cure FSHD for All (go to: www.curefshdforall.com) initiative for...
Episode #9
MyFSHD is worldwide on FSHD Day
Jun 24, 20251h 19mS4"You're gonna need a bigger boat." MyFSHD is our summer blockbuster passion project. We discuss how to get it done, whatever your "it" is, in the FSHD space, as well as our trip to Shanghai and Hanoi to continue our...
- Jun 11, 202555 minS4
"I'll have what she's having." We'll take you through and discuss the recent release of Avidity Biosciences topline results from the phase 1/2 FORTITUDE trial and the preliminary data from the biomarker cohort extension.
Recent guests
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Best industries to pitch MyFSHD for
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