business
Hosted by The SPEAK Foundation · business · EN
Every Voice Speaks unites and empowers the muscular dystrophy community by elevating patient voices and fostering collaboration across conditions like LGMD, FSHD, myotonic, Becker and Duchenne. Through personal stories, expert interviews, and accessible discussions, the show helps listeners understand drug development and learn how their input can influence trials, policies, and care. By centering lived experience, it strengthens advocacy, advances research, and supports better futures for kids and adults living with muscular dystrophy.
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Contact path
Verified email
Booking probability
28%
Guest openness
Selective
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Signup to Generate a PitchEvery Voice Speaks unites and empowers the muscular dystrophy community by elevating patient voices and fostering collaboration across conditions like LGMD, FSHD, myotonic, Becker and Duchenne. Through personal stories, expert interviews, and accessible discussions, the show helps listeners understand drug development and learn how their input can influence trials, policies, and care.
Every Voice Speaks is hosted by The SPEAK Foundation. The show has published 10 episodes to date.
Recent episodes include "From Our Lives to Capitol Hill: Why LGMD Advocacy Matters" (21 October 2026, 49 minutes), "Love, Partnership, and Care: Married Life With Limb-Girdle Muscular Dystrophy" (22 September 2026, 51 minutes), and "Adulting with Muscular Dystrophy - A Conversation with People Who Live It" (11 August 2026, 55 minutes).
Every Voice Speaks publishes roughly monthly, with episodes averaging 46 minutes across 10 episodes.
Booking probability for Every Voice Speaks is 28%, and the host is rated Selective on guests. Every Voice Speaks requires a Pod Score of 80 or higher. Every Voice Speaks's contact route on record: verified email.
The strongest fits for Every Voice Speaks are Health & Wellness Services and Scientific Research & Development. Every Voice Speaks has a business audience.
The SPEAK Foundation hosts Every Voice Speaks, a business podcast with 10 episodes published.
Our AI reads these to draft pitches. Use them as grounding for a pitch that cites a real guest and a specific topic.
Episode #9
This episode explores why advocacy matters for people living with limb-girdle muscular dystrophy (LGMD) and how uniting all subtypes around the common goal of better treatments can strengthen the community’s voice...
Episode #8
This episode centers on married adults with LGMD and the spouses who provide care. The discussion makes room for both love and difficulty: the pride and closeness that can come from mutual support, as well as fatigue...
Episode #7
A powerful look at adult life with limb-girdle and Becker muscular dystrophy—featuring real stories, practical insights, and honest conversations about independence, identity, and resilience. Tune in for authentic...
Episode #7
Join hosts Pat and Kat as they provide commentary on their discussion with Sarepta Therapeutics.
Episode #6
<p>Join hosts Kat and Pat as they sit down with Dr. Louise Rodino-Klapac (Head of R&D) and Dr. James Richardson (CMO) from Sarepta. This episode shines a light on the clinical hold that the FDA has put on the company’s...
Episode #5
<p>Parent Project Muscular Dystrophy got its start in 1994, when Pat Furlong and a group of parents and grandparents decided they couldn’t wait any longer for progress in Duchenne research. After her sons, Christopher...
Episode #5
Parent Project Muscular Dystrophy got its start in 1994, when Pat Furlong and a group of parents and grandparents decided they couldn’t wait any longer for progress in Duchenne research. After her sons, Christopher and...
Episode #4
Today, we’re asking a question that’s becoming harder to ignore: Who is the current drug development system actually built for—and who is it leaving behind? Science is advancing at an unprecedented pace, access to that...
Episode #4
<p>Today, we’re asking a question that’s becoming harder to ignore: Who is the current drug development system actually built for—and who is it leaving behind?</p><p>Science is advancing at an unprecedented pace, access...
Episode #3
<p>This episode highlights the real financial burden of adults living with a rare chronic illness. Hosts Kat and Pat center lived experience, and connect personal stories to larger systemic issues. Episode 3 features...
Episode #3
This episode highlights the real financial burden of adults living with a rare chronic illness. Hosts Kat and Pat center lived experience, and connect personal stories to larger systemic issues. Episode 3 features Abby...
Episode #2
Adult multidisciplinary clinics for muscular dystrophy are essential because the disease affects many body systems and causes complex cardiac, respiratory, orthopedic, and psychosocial issues that require coordinated...
Episode #2
<p>Adult multidisciplinary clinics for muscular dystrophy are essential because the disease affects many body systems and causes complex cardiac, respiratory, orthopedic, and psychosocial issues that require coordinated...
Episode #1
<p>The conversation centers around the experiences of individuals living with Muscular Dystrophy, focusing on personal diagnosis stories, the challenges faced during childhood, and the importance of advocacy within the...
Episode #1
The conversation centers around the experiences of individuals living with Muscular Dystrophy, focusing on personal diagnosis stories, the challenges faced during childhood, and the importance of advocacy within the...
Recent guests on Every Voice Speaks. Study who booked and why before you pitch.
Head of market development for fraud and risk, Premium Growth Solutions
Brewer and Production Manager, Virginia Commonwealth University Health
Sarepta Therapeutics
Parent Project Muscular Dystrophy
PitchCentric classifies Every Voice Speaks under these industries. Guests from them are the closest fit, and each links to the best podcasts in that industry.
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