No one knows the experience of living with FSHD better than those who have it. FSHD Straight Talk features stories of life with this rare disease. Tune in to learn from, laugh, celebrate and sometimes grieve with fellow members of the FSHD community. Whatever your journey, we hope you’ll find yourself in these episodes and know you are not alone.
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Contact path
Verified email
Booking probability
34%
Guest openness
Selective
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Signup to Generate a PitchNo one knows the experience of living with FSHD better than those who have it. FSHD Straight Talk features stories of life with this rare disease. Tune in to learn from, laugh, celebrate and sometimes grieve with fellow members of the FSHD community. Whatever your journey, we hope you’ll find yourself in these episodes and know you are not alone.
Recent episodes include "181: Real Life, Real FSHD with Ryan Olson" (27 October 2026, 62 minutes), "179: Expand Your Life: Beginning, Again & Again, with Christine Hoene" (29 September 2026, 61 minutes), and "178: Why We Roll, 2026 Walk & Roll Special Episode" (19 September 2026, 51 minutes).
FSHD Straight Talk with Tim Hollenback publishes roughly every two weeks, with episodes averaging 55 minutes.
Booking probability for FSHD Straight Talk with Tim Hollenback is 34%, and the host is rated Selective on guests. FSHD Straight Talk with Tim Hollenback requires a Pod Score of 80 or higher. FSHD Straight Talk with Tim Hollenback's contact route on record: verified email.
The strongest fits for FSHD Straight Talk with Tim Hollenback are Health & Wellness Services and Family & Social Services. FSHD Straight Talk with Tim Hollenback has a health audience.
FSHD Straight Talk with Tim Hollenback is a health podcast.
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Episode #181
Real life requires real answers, something Ryan Olson seeks to provide through his new website: RealFSHD.com . This week, Ryan Olson returns to the podcast to talk candidly about life with FSHD and why he created a site...
Christine Hoene is a force of nature. From windsurfing to roller pole to ice climbing, there are very few sports she hasn’t tried. Convinced by a dream in her 30s to live life to the fullest, Hoene chose to try a new...
Join us for the 2026 Walk & Roll special episode of FSHD Straight Talk with Tim Hollenback. This year’s episode features: Dana Simone-Kurtz, San Diego; Joanne Dalessandro, Chicagoland; and Jane Roberts, Alberta, Canada...
Episode #177
Stephen Pollock is a dedicated father and pastor, living each day as a commitment to his faith. Born in Ireland, Pollock started his career practicing family medicine. In this episode he reflects on how his symptoms...
Rami Jokinen is a scholar, a musician, an advocate, and a jokester. Part of the Beat FSHD!-Combo, you might recognize him from the band’s recent World FSHD rock anthem and as the wearer of a hat bearing his ask of...
Episode #175
Fashion designer Vasiliki “Vas” Charitonos believes adaptive clothing can be both accessible and stylish. Her approach is informed by her own experience with FSHD. As a teenager, Vas began adapting her clothes when...
Kathy Chase has a sense of humor - about life and her husband Larry’s FSHD diagnosis. In this episode, Kathy joins Tim for a candid conversation about how FSHD has affected and strengthened her marriage. Kathy’s blogs...
Episode #173
<p>This week, Chris Carrino returns to FSHD Straight Talk for a conversation about inspiration. Recently awarded the Curty Gowdy Media Award and entered into the Naismith Basketball Hall of Fame, Carrino discusses...
Episode #173
This week, Chris Carrino returns to FSHD Straight Talk for a conversation about inspiration. Recently awarded the Curty Gowdy Media Award and entered into the Naismith Basketball Hall of Fame, Carrino discusses feeling...
Episode #172
<p>Happy World FSHD Day 🍊🧡 On June 20th, folks living with FSHD and their communities come together to raise awareness about FacioScapuloHumeral Muscular Dystrophy. June 20th is a day for sharing stories and...
Episode #172
Happy World FSHD Day 🍊🧡 On June 20th, folks living with FSHD and their communities come together to raise awareness about FacioScapuloHumeral Muscular Dystrophy. June 20th is a day for sharing stories and information...
<p>This week Lexi Levine returns to the podcast accompanied by Kate, an adaptive crew athlete and subject of Lexi’s latest documentary film “Against the Current: Kate’s Fight for Inclusion.” Learn about crew (as a...
Episode #170
<p>Veronika Hahn, like many in the FSHD community, is a life-long athlete who refuses to let FSHD steal her joy. In this episode, Hahn discusses her passion for extreme, endurance athletics including the Braveheart Run...
Episode #171
<p>In our first NPR-style Tiny Desk Concert, Gracie Caggiano joins Tim to perform two of her songs and discuss life as a singer-songwriter living with FSHD. Based in Kansas City, Caggiano’s vocals are ethereal and...
<p>This week, Ryan Olson, a mechanic turned web designer and programmer, joins Tim for a nuanced discussion about life after diagnosis, finding community support, and maintaining your masculinity as your muscles...
<p>Introducing the High 5 Challenge, an awareness and fundraising campaign created and led by folks living with facioscapulohumeral muscular dystrophy (FSHD). The campaign seeks to increase awareness of FSHD’s existence...
Episode #166
<p>Justin aka TurfTank returns to the podcast for an engaging conversation about adaptive sports and maintaining your athletic passions as FSHD progresses. A life-long golfer and former Course Superintendent, Justin...
<p>Almost 1 year to date, Art Abrams went from podcast listener to podcast guest, BetterLife FSHD Ambassador, and Leader of the new Iowa Chapter. In this episode, Tim and Art discuss life after diagnosis, workshopping...
Episode #164
<p>This week we’re sharing a remastered version of an episode from 2022 featuring Claire Szabo-Casella, author of The Red Scooter Diaries and start of the short documentary film of the same name. During this phenomenal...
<p>Tim kicks off 2026 by interviewing Jessica Ryley Hammond, a counselor running for Harford County Council. A lifelong athlete and horse-rider, Jessica was inspired to run for County Council because her rural community...
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