Hosted by Project CASK · 🇺🇸 US · EN · 21 episodes
Established thought leaders with verified media credentials.
The Project CASK Podcast is a place for the CASK community to gather to share our stories, deepen our connections, learn from each other and from others, and hopefully find laughter and joy as we travel this rare disease journey together.
Project CASK hosts Project CASK Podcast, a business show with 21 episodes published.
August is here — and so is Make a Splash for CASK, our annual global fundraiser to raise awareness and fuel therapeutic development for CASK gene disorders. In this episode of The ROAR, Project CASK co-founder Hitomi Kub
🎙️The latest episode of the ROAR is here, full of exciting updates and real ways you can help move the needle for the CASK community. https://youtu.be/X3DoyBRXUoU Here’s what’s inside: 🧬 What recent progress in gene re
The latest episode of [ The Roar ] is here! This episode, we’re diving into: 🩵💜🩷 A huge thank you to our community for your incredible Rare Disease Day advocacy—your voices matter! 🔬 [1:00] Research updates - what’s
We have an exciting year ahead, and look forward to sharing it with you! Listen in as Hitomi Kubo shares in more detail, on what’s to come in 2025… Feb - Roar For Rare! Share how you’re Roaring for CASK and all rare dise
Happy New Year, CASK community! We’re back with a new episode of the ROAR 🦁🎧 your one-stop for research-related information and other happenings in the CASK community.In this episode, we talk about our ⚡️WHY⚡️ and the
In this episode, Hitomi provides an overview of where we are and why on our roadmap to treatments and a cure, shared at last weekend's Project CASK Open House!Hear about:🤝 Step 1: Build the team - scientists, partners a
📣 More details on the gene replacement study being funded by Project CASK! 🧬We recently shared that Project CASK is awarding a two year $375 thousand dollar grant to support the early phase of translational research ai
We’ve launched our first Request for Applications (RFA)! What’s in it and what’s next? Check out this message from Hitomi Kubo of Project CASK, breaking down the basics of this exciting new step in our collective journey
Grab a cup of hot tea and a cozy blanket for this intimate conversation with Australian CASK mum, Louis Konz. Mother to sixteen year old Bethany who received her diagnosis “later” in life, Louis eloquently shares her jou
Join in this collective community effort and honor our fathers and father figures, who support us and our families on this CASK journey.
Our special guest today is Stefanie Trask, mama to the absolutely adorable Ellie and the sweetest big brother, Bo. Lately, we’ve had many questions from newly diagnosed parents about intensive therapies, and we’ve seen a
In this episode, Hitomi highlights Project CASK’s two exciting new partnerships — the Rare Disease Translational Center at Jackson Laboratory and Combined Brain — and the opportunities they open for the CASK community. T
On this episode of The ROAR, we are thrilled to share the news of an upcoming epilepsy and seizure study! This study titled, “Identifying biomarkers for epilepsy in patients with CASK associated pathogenic variants” will
This week we talk with neurologist Dr. Laurie Seltzer, registerd dietitian Leean Habben, and CASK gene mama Christine Phillips regarding the ketogenic diet, and it's positive impact on epilepsy! Don't miss the updates on
This week we have CASK mamas Rachel Alves, Amanda Ruebusch and Alexis Taylor. These three mamas did something probably most of us dream about but don’t manage to do. They attended a weekend retreat for mothers of childre
Today our special guest parent is Christine Phillips, mama to Emmy and Andy… Being such a small community, it’s probably the case that our children are all unique. But in that sea of originality, little Emmy is a truly r
Today, June 18th, we celebrate Father’s Day in Chile, France, Ireland, Lebanon, the Netherlands, Nigeria, the Philippines, Russia, the United Kingdom, the United States and so many other countries across the world. It is
We are so happy to have CASK mama Allie Dowell on the podcast! Allie has a particularly unique position as a mom of a boy with cask, a carrier herself, an early intervention therapist and an adjunct professor. In this ep
This episode is dedicated to all the beloved ones we have lost in our cask community. Their names will forever be in our hearts, and on our minds. Spoken in our homes, our community, and in our advocacy. May the peace wh
Join us as we chat with Emily Stiglitz, mama to two year old Sophie! We talk about the ups and downs of a new diagnosis, and learn a little more about her journey. Enjoy this link to the Fralin Biotechnical Research Inst
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Project CASK Podcast is hosted by Project CASK. The show is categorised under business (non-profit) and has published 21 episodes.
Project CASK Podcast has published 21 episodes.
Project CASK Podcast regularly covers business, non-profit. It sits in the business category, with a non-profit focus.
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