Chronically Glitched Podcast ( M.E / Chronic Fatigue Syndrome )

This week’s episode is a shorter one. The episodes in between my Mum & Me episodes will often be a bit shorter. It gives me a little more breathing room between the bigger recordings while still letting me check in with...

This week I’m talking about something that’s been on my mind a lot lately. It struck me recently that if you scroll back through our family WhatsApp group, I’m hardly in any of the photos anymore. It’s not because...

Even Rest Needs Rest This week we’re taking a short break from the podcast. It’s been one of those fortnights where life has simply happened – we’ve had the hot weather, family visiting, and I even managed to have a...

In this episode of Chronically Glitched, I take a closer look at what an ME/CFS crash actually feels like and the three stages I experience during post exertional malaise (PEM). I talk through the build up, the sudden...

<p>In this episode Mum and me talk about our little holiday to Marske and how it actually went in reality. We talk about the good moments, the bits where I managed to feel a little more normal again, and then the...

<p>Episode 13: This Is Also ME, Crashing with Chronic Fatigue Syndrome in Real Time</p><p><br></p><p>This wasn’t supposed to be the next episode.</p><p><br></p><p>Mum and me were due to record properly, but I’ve been...

<p>Part two with Nicola, now focusing on life after diagnosis.</p><p>We talk about what Functional Neurological Disorder actually feels like day to day. Nicola describes it as her brain firing on three cylinders instead...

<p>In this episode of Chronically Glitched, my friend Nicola joins me for the first part of a very honest conversation.</p><p>We talk about how we met and how our friendship grew through shared experiences of chronic...

<p>We start with a catch up after a busy couple of weeks, including Mum being interviewed about coming over from Ireland. Then we move into what I’ve been doing, including trying at home massage and what it does to the...

<p>This episode is a conversation with my son Gabriel about what it was actually like growing up with a mum with ME.</p><p><br></p><p>We talk about when he first realised something wasn’t right, how it affected our day...

<p>In this Mum and Me episode we talk about misinformation around ME and chronic fatigue syndrome, and how dangerous cure narratives can spread online.</p><p><br></p><p>From nervous system “recovery” claims to staged...

<p>Trailer for Episode 8 of Chronically Glitched.</p><p><br></p><p>In this Mum & Me episode we talk about misinformation around ME and chronic fatigue syndrome, and the real harm that dangerous cure narratives can...

<p>It’s Not the Plastering. It’s My Nervous System.</p><p><br></p><p>When the plasterers were in, nothing catastrophic happened.</p><p><br></p><p>No one shouted.</p><p>No one threatened me.</p><p>Nothing objectively...

<p>PLANS FAIL AND FAIL AGAIN</p><p>Mum and Me</p><p><br></p><p>This episode is about plans. Making them. Needing them. Watching them fall apart. Over and over again.</p><p><br></p><p>In this Mum and Me episode we talk...

<p>In this bonus episode of Chronically Glitched, I look at love through a disability lens. Not the romanticised version, not the inspirational one, but the real one that happens when illness changes the ground...