What does Global Genes do?

Global Genes is a prominent non-profit advocacy organization focused on supporting individuals and families affected by rare and genetic diseases. Established in 2009, it has grown into a global movement that connects over 500 organizations and impacts more than 400 million people worldwide. Headquartered in Washington, D.C., Global Genes is recognized as a 501(c)(3) entity and emphasizes its mission through the Blue Denim "Genes Ribbon," symbolizing hope and solidarity. The organization offers a range of advocacy, educational, and community-building services. It empowers patients and families, provides training for future advocates, and collaborates with various partners to enhance awareness and research initiatives. Global Genes also produces educational materials for the public and medical professionals, aiming to improve understanding and treatment of rare diseases. Through events and a global network, it fosters collaboration among patients, caregivers, and advocacy leaders, ensuring that those affected by rare diseases are connected and supported.