Hosted by Shivani Vyas · 🇺🇸 US · EN · 43 episodes
Established thought leaders with verified media credentials.
The Rare Disorder Podcast is a podcast created by Shivani Vyas, a high school senior, young changemaker, and rare disease advocate, dedicated to spreading awareness for rare diseases. This podcast is divided into 2 main series. In the "Meet a Fighter," Shivani interviews patients and those affected by rare diseases allowing them to share their inspirational stories. In "Meet An Expert/Partner," Shivani interviews public health experts, rare disease organization leaders, rare advocacy leaders, and more!Check out my other initiatives and platforms: https://linktr.ee/theraredisorderpodcast
Shivani Vyas hosts The Rare Disorder Podcast, a science show with 43 episodes published.
This episode isn’t about rare disease, advocacy, or biotech—at least not directly. It’s different. It’s slower. It’s personal. I recorded this audio piece on my summer abroad in Switzerland and Italy, where I spent time
Welcome to "Innovate, Iterate, Impact" ft. Co-Founder of AdaptTrack, Samuel Taggard. This is a podcast exploring the transformative journey of entrepreneurship through the lens of academic learning and real-world insight
Show Notes: In this episode, I chat with Wes Michael, President at Rare Patient Voice. Wes Michael, President and Founder of Rare Patient Voice, has been involved in rare and orphan diseases since 1998, interviewing and
Show Notes: In this episode, I chat with Ben LeNail, Healthcare Investor & Consultant. Ben Lenail, based in Palo Alto CA, has consulted with biotech companies such as Minoryx Therapeutics, Autobahn Therapeutics, and Deep
Show Notes: In this episode, I chat with Dr. Terry Jo Bichell, Founder & Director at COMBINEDBrain. Terry Jo Bichell worked as a documentary filmmaker in the early days of videotape, then became a public health nurse-mid
Show Notes: In this episode, I chat with Daniel Dry Dock Shockley, a retired Navy, a veteran, and a 10 year hereditary colon cancer warrior. Daniel serves as a member of the University of Michigan Genetic Hereditary Test
The episode we've all been waiting for, and it's finally here! In this episode, I'm so honored to chat with Beth Nguyen. Beth is the Managing Director; Founding Partner, and President of Rare STRIDES. Beth is a seasoned
In this episode, I chat with Rich Horgan, the Founder and President of Cure Rare Disease. Cure Rare Disease is developing custom therapeutics that are as unique to the individuals they are meant to treat. Their mission i
In this episode, I chat with Saida Mahoney, a fighter of Partial Trisomy Of 8q. Saida Luvenia Mahoney is 25 years old and lives in Oakland, California. She is an author and a proud student at Modesto Junior College, San
In this episode, I chat with Ella Balasa, a Patient Advocate, Speaker, and Consultant. Ella is passionate about amplifying the patient voice in healthcare. Having a background in biology, Ella has experienced both sides
In this episode, I chat with Terry Wilcox, the Founder and Executive Director of Patients Rising and Patients Rising Now. Formed in 2015 as a 501(c)3, Patients Rising has developed a significant following of over 110,000
In this episode, I interview Jenny Jones, a fighter of Familial Adenomatous Polyposis and Short Bowel Syndrome. Jenny was diagnosed with the rare, hereditary colon cancer syndrome Familial Adenomatous Polyposis at age 8
In this episode, I chat with Parvathy Krishnan, a rare mom and the Foundation Alliance Manager at Global Genes. Global Genes provides hope for the more than 400 million people affected by rare disease around the globe. T
In this episode, I chat with Courtney Felle, a Patient Engagement Fellow at EveryLife Foundation for Rare Diseases. The EveryLife Foundation for Rare Diseases is a 501(c)(3) nonprofit, nonpartisan organization dedicated
In this episode, I chat with Maria Thacker-Goethe, the CEO of Georgia Bio. Maria Thacker-Goethe has more than 13 years of experience in non-profit management and development. She was appointed president and CEO for Georg
In this episode, I chat with Dr. Sarah McCool, who is a Clinical Associate Professor and Director of Undergraduate Programs at the School of Public Health at Georgia State University. In this podcast, Dr. McCool discusse
In this episode, I chat with Dr. Monkol Lek, who is an assistant professor of genetics at Yale University, and an avid researcher with his own established lab, the Lek Lab, at Yale Medical School. He is also part of the
In this episode, I chat with Tara Britt, who is the Associate Chair of the North Carolina Rare Disease Advisory Council and Founder and President of the Rare Disease Innovations Institute. Rare Disease Innovations Instit
In this episode, I chat with Annie Watson, a high school student, aspiring journalist and podcaster who has a rare sleep disorder called narcolepsy. She was diagnosed at 6 years old, and finally stepped into the rare dis
In this episode, I chat with Anna Laurent, who is the Head of Programs and Initiatives at Our Odyssey, an organization which aims to connect young adults impacted by a rare or chronic condition with social and emotional
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The Rare Disorder Podcast is hosted by Shivani Vyas. The show is categorised under science (natural) and has published 43 episodes.
The Rare Disorder Podcast has published 43 episodes.
The Rare Disorder Podcast regularly covers science, natural. It sits in the science category, with a natural focus.
The Rare Disorder Podcast is accessible for guests with genuine science expertise. A personalised, episode-aware pitch will still outperform a generic one every time.
The Rare Disorder Podcast hasn't explicitly signalled guest openness in recent episodes. That doesn't rule out pitching. your hook just needs to be especially compelling and relevant to their recent content.
Episodes of The Rare Disorder Podcast average 31 minutes. a focused format where a clear narrative arc and tight preparation matter most.
Our data rates The Rare Disorder Podcast's guest bar at 80/100 (Premium tier). Established thought leaders with verified media credentials. Sign in to PitchCentric to see how your own Pod Score compares against this show.
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