This is the Roadmap to Rare. Hosted by OCNDS parent Eric Finn, this podcast explores the reality of the rare-disease journey—sharing hope through real stories, real challenges, and research. This is our rare disease roadmap. Every rare disease journey is different, but no family should have to navigate it alone. On Roadmap to Rare, Eric sits down with parents, advocates, clinicians, researchers, and leaders in the rare disease community to talk about what the path really looks like—from diagnosis to advocacy, research breakthroughs, and everything in between. Together, these conversations shine a light on the experiences that unite the rare disease community: resilience, determination, and hope for the future.
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Contact path
Public web form
Booking probability
36%
Guest openness
Selective
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Signup to Generate a PitchThis is the Roadmap to Rare. Hosted by OCNDS parent Eric Finn, this podcast explores the reality of the rare-disease journey, sharing hope through real stories, real challenges, and research. This is our rare disease roadmap. Every rare disease journey is different, but no family should have to navigate it alone.
Recent episodes include "Episode 9: Tell Her It Can’t Be Done, Then Watch What Happens ft. Nasha Fitter" (21 October 2026, 39 minutes), "Episode 8: Five Practical Ways for Families to Prepare for Clinical Trials ft. Dr. Gabrielle Rushing" (7 October 2026, 27 minutes), and "Episode 7: Reflecting on Rare Disease Week ft. Alyssa Ronco & Jessica Wilfong" (23 September 2026, 41 minutes).
The Roadmap to Rare publishes roughly every two weeks, with episodes averaging 30 minutes across 10 episodes.
Booking probability for The Roadmap to Rare is 36%, and the host is rated Selective on guests. The Roadmap to Rare requires a Pod Score of 80 or higher. The Roadmap to Rare's contact route on record: public web form.
The strongest fits for The Roadmap to Rare are Health & Wellness Services. The Roadmap to Rare has a kids audience.
The Roadmap to Rare is a kids podcast with 10 episodes published.
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The Roadmap to Rare
In Episode 9 of Roadmap to Rare, host Eric Finn is joined by Nasha Fitter, a rare disease parent to her daughter Amara, who has FOXG1 syndrome. Nasha is also co-founder of the FOXG1 Research Foundation and co-founder...
The Roadmap to Rare
In Episode 8 of Roadmap to Rare , host Eric Finn is joined by Dr. Gabrielle Rushing, Chief Scientific Officer of the CSNK2A1 Foundation, to talk about one of the biggest questions that rare disease families may ask...
The Roadmap to Rare
In Episode 7 of Roadmap to Rare , host Eric Finn sits down with two fellow OCNDS parents, Alyssa Ronco and Jessica Wilfong, to talk about their experience at Rare Disease Week in Washington, DC. This three-day event...
The Roadmap to Rare
In Episode 6 of Roadmap to Rare , host Eric Finn is joined by Kevin Pilgrim, an OCNDS parent from the UK. Kevin’s son, Hunter, was diagnosed with OCNDS in 2021. Kevin shares his family’s road to a diagnosis, the relief...
The Roadmap to Rare
In Episode 5 of Roadmap to Rare , host Eric Finn is joined by Jennifer Sills, Founder and President of the CSNK2A1 Foundation, which supports families affected by Okur-Chung Neurodevelopmental Syndrome (OCNDS). Jennifer...
The Roadmap to Rare
In Episode 4 of Roadmap to Rare , Eric Finn is joined by Grace Branger, MGC, a genetic counselor who helps families navigate genetic testing and rare disease diagnoses. Grace discusses the basis of genetic testing...
The Roadmap to Rare
In Episode 3 of Roadmap to Rare , host Eric Finn is joined by Dr. Gabrielle Rushing, Chief Scientific Officer for the CSNK2A1 Foundation, and Dr. Elena Bagatelas. Together, they unpack the science behind Okur-Chung...
The Roadmap to Rare
In Episode 2 of Roadmap to Rare , host Eric Finn sits down with Amber Reynolds, a fellow OCNDS parent and advocate from Colorado, whose 14-year-old daughter, Harper, was one of the first 15 people in the world diagnosed...
The Roadmap to Rare
In the debut episode of Roadmap to Rare , host Eric Finn introduces himself and the mission of the show. Roadmap to Rare aims to shed light on the reality of navigating the rare disease journey through real stories...
The Roadmap to Rare
This is the Roadmap to Rare. Hosted by OCNDS parent Eric Finn, this podcast explores the reality of the rare-disease journey—sharing hope through real stories, real challenges, and research. On Roadmap to Rare, Eric...
Recent guests on The Roadmap to Rare. Study who booked and why before you pitch.
CSNK2A1 Foundation
CSNK2A1 Foundation
PitchCentric classifies The Roadmap to Rare under these industries. Guests from them are the closest fit, and each links to the best podcasts in that industry.
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