Hosted by One Percent Heart · 🇺🇸 US · EN-US · 21 episodes
Established thought leaders with verified media credentials.
Welcome to The One Percent Heart Podcast, inspired by the 1% of people born with a congenital heart defect (CHD) and the journey they navigate at every stage of life. Through heartfelt stories and expert interviews, we highlight the experiences of children and adults living with CHD, while exploring the medical breakthroughs shaping their future. Why does this matter? CHDs are often overlooked, yet they affect millions. We’re here to change that — raising awareness, offering support, and building a more connected community for patients, families, and healthcare providers.
One Percent Heart hosts The One Percent Heart, a health show with 21 episodes published.
What happens after you survive something? Rick Puder's answer was to walk the next person through it. Brook Dorris's answer was to change the system. Both do it through the Adult Congenital Heart Association — and both p
Ten experts from eight institutions spent over a year building a consensus statement on adult congenital heart disease. It was published in the Journal of the American Heart Association — free, open access. It's an impor
If your child was born with a heart condition, there's a connection between their heart and their brain that most families are never told about. Dr. Dawn Ilardi is a pediatric neuropsychologist who has spent nearly two d
How do you build a nonprofit while working 60-hour weeks and raising a baby with HLHS? In Part 2, Connor Hill breaks down exactly what Stronger Hearts Foundation has accomplished in just a few months — from hitting their
What happens when your child's heart diagnosis becomes the catalyst for helping hundreds of other families? Connor Hill, co-founder of the Stronger Hearts Foundation, joins the show to share his family's journey with CHD
The ripple effects of one 1952 surgery are still being felt today. In this final part, we explore the awareness gap that leaves thousands of CHD patients without proper care, the difference between congenital and acquire
What happens after you survive a surgery that wasn't supposed to work? Bill Causey didn't just survive - he thrived. Law school, 34 years teaching at Georgetown, marriage, family, and a career that impacted thousands. In
In 1952, a three-year-old blue baby was given weeks to live. On Dr. Alfred Blalock's 54th birthday, he and his team performed a groundbreaking surgery that would change cardiac care forever. 73 years later, Bill Causey i
Be advised: This episode discusses medical trauma including loss of autonomy and denial of care. Listener discretion is advised. Episode 11: Women's Health & CHD A candid look at how “risk management” can morph into cont
The app putting CHD patients in control - and the remarkable story behind it. Meet the team behind EmpowerMyCH , a groundbreaking app created specifically for CHD patients. Dr. Anu Agarwal (ACHD Specialist, UCSF), Projec
Transforming Personal Trauma into Powerful Advocacy In this episode of the One Percent Heart, I'm joined by Brook Dorris, a patient advocate, special education teacher, and member of the Nashville Walk for 1 in 100's pla
How Peer Mentors Change the Game for CHD Patients and Families In this special episode of The 1% Heart , we highlight the power of peer mentorship and the incredible impact of the Adult Congenital Heart Association’s (AC
Heart Failure and the Transplant Process In this episode of The 1% Heart podcast, we hear from Bailey Vincent, a congenital heart patient currently undergoing evaluation for advanced therapies due to heart failure. Born
Navigating the relationship between CHDs and exercise In this episode, we get to hear from a rock climber with a mechanical valve. Bob Smith, an English teacher from Colorado, takes us through his CHD journey and his exp
The Peer Mentor Program and having someone who gets it In this special episode of The 1% Heart, we learn about peer support in the CHD community and the Adult Congenital Heart Association's Peer Mentor program. We get to
How CHD medical trauma can influence mental health In the fifth episode of The 1% Heart, I get the opportunity to learn from Meghan Stewart of Hands to Heart Therapy. Meghan is a CHD patient and registered clinical couns
A crossover episode with Stewart Liang of Heart2Hearts Podcast In this special crossover episode of The 1% Heart , I am joined by Stewart Liang, the UK-based advocate and creator of the Heart2Hearts podcast. We take a de
How raw advocacy is changing how patients are viewed by society In the third episode of The 1% Heart, I'm joined by Bethany and Hannah Keime, the founders of HeartCharged and CHD Patients. Our conversation delves into th
How advocacy influences public policy and the charities and organizations fighting for heart patients In the second episode of The 1% Heart, I'm joined by Mark Roeder, President and CEO of the Adult Congenital Heart Asso
A brutally honest discussion of the Congenital Heart Defect care experience from very different perspectives. In the first episode of 1% Heart , I’m joined by Aliza Marlin , a CHD patient, influential advocate, and a ray
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The One Percent Heart is hosted by One Percent Heart. The show is categorised under health (fitness) and has published 21 episodes.
The One Percent Heart has published 21 episodes.
The One Percent Heart regularly covers health, fitness. It sits in the health category, with a fitness focus.
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Episodes of The One Percent Heart average 38 minutes. a focused format where a clear narrative arc and tight preparation matter most.
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