Surviving out of Spite

Welcome to Surviving out of Spite, a G-PACT podcast hosted by two patients living with gastroparesis. This show dives into the challenges , triumphs and everything in between that comes with managing a chronic condition. From heartfelt personal stories to practical advice and lots of laughs along the way, we explore the patient experience, provide informative content, and create a space where you're not alone. Join us as we talk life, health and all the things that make this journey unique.

Surviving out of Spite is a business podcast hosted by G-PACT non profit, with 56 episodes on record and a Required Pod Score of 80. PitchCentric scores this show on Booking Probability, Listen Score, and live audience signals refreshed every 24 hours.

G-PACT non profit hosts Surviving out of Spite, a business show with 56 episodes published.

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  Surviving out of Spite

  Cyclic Vomiting Syndrome: The Misunderstood GI Disorder, Medical Trauma & Fight for Better Care

  Aug 19, 202649 min

  Cyclic Vomiting Syndrome (CVS) is more than just “vomiting.” It is a debilitating GI disorder that can cause intense, recurring episodes of violent vomiting, emergency room visits, hospitalizations, dehydration, malnutrition, and a devastating impact on daily life. Yet many patients and families face years of searching for answers, misdiagnosis, stigma, and the painful experience of not being believed. In this episode of Surviving Out of Spite , Sam sits down with Blynda, President of the Cyclic Vomiting Syndrome Association, to discuss the reality of living with CVS and the challenges families face when navigating the healthcare system. Blynda shares her son’s journey with cyclic vomiting syndrome and abdominal migraines, including the struggles of getting a proper diagnosis, finding knowledgeable providers, and advocating for compassionate medical care. Together, they talk about the connection between CVS and migraines, the trauma many GI patients experience in emergency rooms, the harm caused when patients are dismissed or accused of exaggerating symptoms, and why advocacy and awareness are critical for rare and misunderstood conditions.

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  Surviving out of Spite

  Parkinson's Disease & Gastroparesis: The Gut-Brain Connection Explained

  Aug 12, 202644 min

  Could Parkinson's disease begin in the gut? Emerging research suggests the connection between the gut and brain may be much stronger than we once believed.In this episode, Sam talks with Dr. Trisha Pasricha to explore the relationship between Parkinson's disease, gastroparesis, constipation, and other gastrointestinal disorders. Together, they discuss how digestive symptoms often appear years before neurological symptoms, why dopamine plays an important role in both the brain and the digestive tract, and what researchers are learning about the gut-brain axis.Dr. Pasricha explains why many people living with Parkinson's struggle with delayed gastric emptying, constipation, nausea, and other GI symptoms that can significantly impact quality of life. She also shares why treating digestive symptoms can be especially challenging, how specialists approach care, and what promising research may mean for future treatments.The conversation also dives into the importance of multidisciplinary care, the benefits of pelvic floor therapy, patient advocacy, and why understanding the whole body is essential when managing chronic illness.

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  Surviving out of Spite

  The Story Behind Training for Life | A Chronic Illness Documentary

  Jul 29, 202643 min

  What does it really take to tell an authentic story about chronic illness? In this behind-the-scenes conversation, Sam sits down with Joe Keenan to discuss the creation of Chronic Life Media and the documentary that captures the realities, resilience, and humanity of people living with chronic illness. From the first concept to filming, editing, and planning for film festivals, they share what audiences don't see, and why authentic storytelling matters. Living with a chronic illness is about so much more than symptoms. This episode explores how powerful stories can help break stereotypes, build empathy, and remind the world that patients are complex individuals with dreams, goals, relationships, and lives beyond their diagnoses. Whether you're living with gastroparesis, a different chronic illness, or supporting someone who is, this conversation offers an honest look at the power of sharing our stories and the impact authentic representation can have. If you've ever wondered what goes into creating a documentary about chronic illness, or why these stories matter, this episode is for you.

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  Surviving out of Spite

  Inside Gastroparesis Care: A Gastroenterologist Answers Your Biggest Questions

  Jul 15, 202639 min

  Why is gastroparesis so difficult to diagnose and treat? In this episode, Sam chats with gastroenterologist Dr. Aditi Stanton to discuss the realities of living with and treating gastroparesis, one of the most challenging digestive disorders. Dr. Stanton shares why gastric emptying studies don't tell the whole story, the biggest gaps in gastroparesis care, and why nutrition, patient advocacy, and strong communication between patients and providers are essential for better outcomes. They also talk about treatment approaches, the role of GI psychologists, stress and the gut-brain connection, and why managing chronic digestive diseases requires a personalized, multidisciplinary approach. Whether you're living with gastroparesis, chronic nausea, vomiting, early satiety, or other GI motility disorders, this conversation offers practical insights from both the physician and patient perspectives.

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  Surviving out of Spite

  AI, Data Privacy & Trust in Healthcare: Patient Empowerment, Tech Ethics & Medical AI (Part 2)

  Jul 1, 202634 min

  Can patients trust AI with their healthcare decisions? And who should be responsible when technology becomes part of the diagnostic process? In Part 2 of this conversation, Sam and Erika from IncitefulMed dive deeper into the complex relationship between artificial intelligence, healthcare, trust, and patient advocacy. As AI becomes increasingly integrated into medicine, patients are faced with important questions about privacy, transparency, accuracy, and who ultimately controls their health information. Erika shares some insights on the role AI can play in helping patients understand symptoms, medical research, and treatment options while emphasizing the importance of context, critical thinking, and human oversight. Together, they explore why there is often a gap between medical research and real-world clinical practice, and how technology can help bridge that divide. This discussion also tackles healthcare incentives, pharmaceutical influence, monetization within health technology, and the challenges patients face when trying to determine which tools and sources of information are truly trustworthy. For those living with chronic illness or rare diseases, access to accurate information can be empowering, but understanding where that information comes from is just as important. Together, they have an honest conversation about the future of AI in medicine, the importance of transparency in healthcare technology, and how patients can become stronger advocates for themselves in an increasingly digital healthcare landscape.

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