Jan 2, 202622 minS11
This episode is about my album Glitter, and the pieces of my story with VEDS (Vascular Ehlers-Danlos Syndrome) that went into it. This album was produced through my record label, Sillybug Studios, LLC. Carry the Torch...
society
Staying Connected
Hosted by Katie Wright · society · EN
About this Podcast:
I started Staying Connected as a way to connect with other people diagnosed with or impacted by Vascular Ehlers-Danlos Syndrome, or VEDS. I myself was diagnosed with VEDS in 2017, and meeting others with VEDS has changed how I handle my own diagnosis. In this podcast I connect with other people whose lives have been impacted by VEDS and related vascular and aortic connective tissue conditions, like Marfan and Loeys-Dietz, getting a chance to hear and share their stories!
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Contact path
Verified email
Booking probability
28%
Guest openness
Selective
80/100
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Signup to Generate a PitchQuestions about Staying Connected
What is Staying Connected about?
I started Staying Connected as a way to connect with other people diagnosed with or impacted by Vascular Ehlers-Danlos Syndrome, or VEDS. I myself was diagnosed with VEDS in 2017, and meeting others with VEDS has changed how I handle my own diagnosis.
Who hosts Staying Connected?
Staying Connected is hosted by Katie Wright. The show has published 20 episodes to date.
What has Staying Connected covered recently?
Recent episodes include "Making Music About My Story with VEDS (Glitter)" (2 January 2026, 22 minutes), "Reconnecting with Dr. Shaine Morris" (26 December 2025, 43 minutes), and "Robyn Beer" (16 December 2025, 43 minutes).
How often does Staying Connected publish?
Staying Connected publishes roughly weekly, with episodes averaging 48 minutes across 20 episodes.
How hard is it to get booked on Staying Connected?
Booking probability for Staying Connected is 28%, and the host is rated Selective on guests. Staying Connected requires a Pod Score of 80 or higher. Staying Connected's contact route on record: verified email.
Who should pitch Staying Connected?
The strongest fits for Staying Connected are Health & Wellness Services. Staying Connected has a society audience.
About the host
Katie Wright hosts Staying Connected, a society podcast with 20 episodes published.
Verified host email: ████████@████.comSign in to unlock →
Recent episodes
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Episode #8
Reconnecting with Dr. Shaine Morris
Dec 26, 202543 minS11In this episode, we’re going to talk to Dr. Shaine Morris, a pediatric cardiologist at Texas Children’s Hospital in Houston, Texas who is well known in our community. Shaine was on the show in 2021, and in episode she...
Episode #7
Robyn Beer
Dec 16, 202543 minS11In this episode, we talk with Robyn Beer, who was diagnosed with VEDS, or Vascular Ehlers-Danlos syndrome, last year. One of her sons was also diagnosed. In this episode, she shares how she got her diagnosis, and how...
Episode #6
Dr. Hal Dietz
Dec 2, 202552 minS11In this episode, I have the honor of talking with Dr. Hal Dietz about his research in VEDS, Marfan, and Loeys-Dietz syndromes. Hal is well known in our community for his research and dedication to improving lives for...
Episode #5
Paul Korotish
Nov 26, 202527 minS11Today we’re going to talk with Paul Korotish, who was just diagnosed with VEDS last year after an iliac artery rupture. Information mentioned in the episode: 2017 International Classification of Ehlers-Danlos syndromes...
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Episode #4
Dr. David Murdock
Nov 18, 202536 minS11Today we’re going to talk with Dr. David Murdock, a clinical geneticist at the University of Texas Health Science Center who is doing research in connective tissue conditions, including VEDS, Marfan, and Loeys-Dietz...
- Nov 11, 20251h 23mS11
In this episode, we’re going to talk with Mike Osuna and Jeanette Garcia-Osuna about their son, Lucas’s, story with Loeys-Dietz syndrome, type 2. Lucas died at the age of 15 from an aortic dissection and Loeys-Dietz...
Episode #2
Reconnecting with Grace Barnhart
Nov 4, 202552 minS11In this episode, we’re going to reconnect with Grace Barnhart, who was on the show a couple years ago sharing her personal story and caregiver story with Marfan syndrome. Grace is coming back on the show to talk about...
Episode #1
Amos Marsters
Oct 28, 20251 hourS11Today we’ll be talking to Amos Marsters, who grew up with the knowledge of VEDS and a family history. Amos lost his father at 6 years old, and then his brother at 12 years old. He has also had a number of VEDS medical...
Staying Connected
Call for interviewees for the next season of Staying Connected!
Jul 29, 20251 minIt’s been a minute, and I am excited to get back to the show. If you’re interested in sharing your story on the next season, please let me know by filling out this form. https://calendly.com/d/z7h-2cc-g33 Look forward...
Episode #8
Carlos Morales, sharing Kaitlyn’s story
Jan 3, 202556 minS10<p>Today, we’re going to talk to Carlos Morales, who lost one of his children, Kaitlyn, to an aortic dissection in 2023 at the age of 14. This aortic dissection led to their diagnosis of Loeys-Dietz syndrome type 2, and...
Staying Connected
Carmen David
Dec 27, 202458 minS0<p>Today, we’re going to talk to Carmen David, who is going to share her experience with an aortic dissection after the delivery of her second daughter, her experiences recovering from that physically and emotionally...
- Dec 20, 202458 minS10
<p>Today, we’re going to talk to Bella Marin, who was previously on the show to talk about her story with VEDS, or Vascular Ehlers-Danlos syndrome. In today’s episode, she is returning to the show to talk about her...
Episode #5
Marisa Hart
Dec 13, 202445 minS10<p>In this episode, we talk to Marisa Hart, who was diagnosed with Marfan syndrome as a child. Marisa has an extensive family history and shares how Marfan has impacted her life, from sports, to seeing family members...
Episode #4
Tammy Asplund
Dec 6, 202440 minS10<p>Today we’re going to talk to Tammy Asplund about her story with Loeys-Dietz syndrome, which she was diagnosed with at 52 after her son found out he had an aneurysm and also needed open heart surgery. Once he was...
Episode #3
Ryan Rodarmer
Nov 29, 202456 minS10<p>Today we’re going to talk to Ryan Rodarmer, the director of The VEDS Movement, about his personal experience with aortic aneurysm and dissection, and his career as a genetic counselor working with connective tissue...
Episode #2
Claudia Arbelaez
Nov 22, 202447 minS10<p><br />Claudia Arbelaez joins the show to share her story with Vascular Ehlers-Danlos syndrome (VEDS), which she was diagnosed with in 2020 after a kidney infarction and vascular rupture. A couple years after her...
- Nov 15, 20241h 7mS10
<p>Bridget Porter (Metz) joins the show to share her son, Connor’s, story with Loeys-Dietz syndrome, which he was diagnosed with after he died of an aortic dissection at the age of 13. Connor was seen by a geneticist a...
- Sep 6, 20241h 15mS9
<p>Today we will be hearing from Debbie Vaughan about her experience with Vascular Ehlers-Danlos syndrome (VEDS) and her late husband, Josh’s, story with VEDS. Josh passed away not long after their son was born. Near...
Episode #6
Melanie Case
Aug 30, 202444 minS9<p>Today we’re going to hear from Melanie Case, who was diagnosed with Marfan syndrome in 2002, a couple years after she had a thoracic aortic dissection following the delivery of her second child. This aortic...
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