Seizing Life

In honor of SUDEP Action Day on Wednesday, October 15th, we speak with Maria Teresa Ioannou of the Joanna Sophia Foundation who tragically lost her nine-year-old daughter Joanna Sophia to SUDEP in 2018.

Dr. Olivia Hoffman, post-doctoral researcher in Dr. Avtar Roopra’s lab at the University of Wisconsin-Madison, discusses one of the most exciting discoveries in epilepsy research in recent years, a repurposed drug that...

Longtime CURE Epilepsy Champion and current board member Shalee Cunneen comes back to the podcast to share her family’s journey with epilepsy and fundraising efforts for a new CURE Epilepsy research initiative.

Dr. Dan Lowenstein discusses the current efforts to push Congress to adopt a National Plan for Epilepsy, explaining who is behind it, what it is, and what it could mean to the epilepsy community.

Mike Simmel shares his epilepsy journey, explains how his passion for basketball helped him navigate the impacts of epilepsy, and recounts how a personal experience with epilepsy stigma inspired him to help kids with...

Dr. Connie Tomaino, music therapist and co-founder of the Institute for Music and Neurologic Function, discusses how music therapy is used to treat neurologic conditions and explains what we know about the power of...

This month on Seizing Life® Dr. Kelly Tyson shares her decade-long journey to an epilepsy diagnosis. Despite numerous visits to various medical experts through the years and majoring in neuroscience in college, Kelly...

This month Seizing Life® goes on location at the Joey’s Song Freezing Man Festival to speak with Kay Hanley and John Cowsill, two musicians with personal connections to epilepsy who participated in the multiday music...

Patricia Dean, ARNP and the Epilepsy Network Specialist in the Comprehensive Epilepsy Center at Nicklaus Children’s Hospital in Miami, discusses managing the relationship with your child’s epilepsy care team.

Dr. Madeleine Oudin shares her daughter’s epilepsy journey following a devastating genetic diagnosis and the onset of infantile spasms, and explains how it has impacted her work as a researcher in pursuing a new...

Joey’s Song founder Mike Gomoll shares his son’s epilepsy story and discusses the creation, growth, and evolution of Joey’s Song into the multi-artist, multi-day, “Freezing Man Festival.”

In observance of Sudden Unexpected Death in Epilepsy (SUDEP) Action Day on October 16th, we speak with the Maffie family about the tragic loss of Anthony Maffie to SUDEP and their advocacy and fundraising efforts in...

This month we welcome Matthew Summerfield to the podcast. Matthew has lived with epilepsy since his first seizure at the age of eleven. Though he was advised early on not to tell anyone about his epilepsy, Matthew has...

This month on Seizing Life® we speak with Dr. Elisa Zanier of the Mario Negri Institute in Milan, Italy about the current state of research into Post-Traumatic Epilepsy (PTE) in the wake of a recent International...

After losing her son to a rare form of epilepsy called NORSE, or New Onset Refractory Status Epilepticus, Nora Wong set out to get answers from doctors and researchers. When she found little information and more...