Hosted by Melody Joy Paine · 🇺🇸 US · EN-US · 23 episodes
Established thought leaders with verified media credentials.
The Rare Rebels™ Podcast shares unscripted conversations with patients, caregivers, advocates, and researchers who are changing the future of rare disease. These aren’t polished soundbites — they’re real voices from the front lines, revealing the humanity, heartbreak, and hope woven into the rare disease experience. Because change doesn’t happen through statistics alone — it happens through connection. Hosted by award-winning storyteller and advocate Melody Joy Paine, Rare Rebels™ brings lived experiences to the forefront, bridging gaps between families, researchers, nonprofits, and industry stakeholders. Through these deeply personal stories, we build understanding, inspire action, and drive meaningful change. Formerly known as the Images of Joy Podcast, Rare Rebels™ is a relaunch and expansion that retains archived episodes while introducing a new lens: one focused on amplifying the rebels in rare disease who refuse to wait for systems to change an
Melody Joy Paine hosts Rare Rebels™, a health show with 23 episodes published.
When this conversation with Shelley Bowen was recorded, there was no resolution yet. Families were still waiting — still pushing — still living inside the uncertainty of whether a treatment would ever make it across the
Léon van Wouwe brings a systems-level perspective to rare disease through his work applying machine learning to healthcare data. His focus is on identifying patients who are already interacting with the healthcare system
Episode 6: Wes Michael | Building the Infrastructure for Patient Voice Wes Michael brings a systems-level perspective to the rare disease ecosystem through his work as the founder of Rare Patient Voice. With a background
Episode 5: Jennifer Siedman | Making Space for Care, Grief, and Hope Jennifer Siedman brings a steady, thoughtful presence to conversations that many families struggle to name. As a parent and leader at Courageous Parent
Episode 4: Megan Soliman | When Medicine Meets Lived Experience Megan Soliman brings a rare dual perspective to this conversation as both a physician and a parent navigating rare disease. Her experience highlights the te
Episode 3: Susannah Fox | Mapping the People Who Move Systems Susannah Fox brings a unique ability to listen deeply and reflect patterns back to the people living them. In this conversation, she shares how that way of li
Episode 2: Emil Kakkis | When Science Becomes Human Emil Kakkis began his career wanting to focus on the science. He imagined a life in the lab, driven by research questions and discovery. What he didn’t anticipate was h
Episode 1: Mark Dant | Connecting the Dots When No Path Exists Mark Dant’s story sits at the foundation of modern rare disease advocacy. Long before online communities, searchable research, or established pathways for dr
If you’ve been subscribed to this feed for a while and you’re wondering how you got here, you didn’t miss anything — the work just evolved. This feed began as Images of Joy and has grown into Rare Rebels™, expanding from
The Imperfect JOY® podcast is taking on a new focus. We will explore resilience through many different challenges that families face when they have a child diagnosed with critical illness. We’re not looking to highlight
https://www.musestorytelling.com/
As kids get older and naturally become more distant from their parents as the explore their indepedence and the way they fit into the larger world outside of the home, it often becomes challenging to document this time w
Join our Affinity group or apply for a mentorship: https://imageofjoy.com — Mandee Simas Bewilder Photography https://www.instagram.com/bewilderphotos — 03:28 Who is Mandee 05:30 Adjusting her approach to photography for
Melissa Ortendahl https://www.melissaortendahlphotography.com/ https://www.instagram.com/melissaortendahlphotography/ ---- View Melissa's Images of Joy: https://imagesofjoy.com/episode-3/ Follow us: https://www.instagram
Lolly Nazario https://www.lollyslens.com/ https://www.instagram.com/lollyslensphotography/ ---- Apply for the Family Filmmakers Certification Beta: https://imagesofjoy.com ---- 01:00 How Lolly got started in photography
Watch Carter's video love note on the companion blog post: https://imagesofjoy.com/episode-8/
View Candice's image of joy on the companion blog: https://imagesofjoy.com/episode-7/ . -----Guest info------ Candice Shuman Candice Shuman Films & Photos Ontario, Canada https://www.instagram.com/candice.shuman https://
Companion Blog: https://imagesofjoy.com/episode-5/ . ------Guest Info------ Anja Poehlmann Brighton & Hove, UK https://www.anjapoehlmann.com/ https://www.instagram.com/by_anjap/
See Mandee's image of joy on the companion blog post: https://imagesofjoy.com/episode-4/ . -----Guest info----- Mandee Simas Bewilder Photography Muskoka, Canada https://www.instagram.com/bewilderphotos/
See Melissa's image of joy on the companion blog post: https://imagesofjoy.com/episode-3/ . ------Guest Info------ Melissa Ortendahl Photography Central, Massachusetts https://www.melissaortendahlphotography.com/ https:/
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Rare Rebels™ is hosted by Melody Joy Paine. The show is categorised under health (fitness) and has published 23 episodes.
Rare Rebels™ has published 23 episodes.
Rare Rebels™ regularly covers health, fitness, medicine. It sits in the health category, with a fitness focus.
Rare Rebels™ is accessible for guests with genuine health expertise. A personalised, episode-aware pitch will still outperform a generic one every time.
Rare Rebels™ hasn't explicitly signalled guest openness in recent episodes. That doesn't rule out pitching. your hook just needs to be especially compelling and relevant to their recent content.
Episodes of Rare Rebels™ average 38 minutes. a focused format where a clear narrative arc and tight preparation matter most.
Our data rates Rare Rebels™'s guest bar at 80/100 (Premium tier). Established thought leaders with verified media credentials. Sign in to PitchCentric to see how your own Pod Score compares against this show.
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