Welcome to PWS United, a podcast for the Prader-Willi Syndrome community, brought to you by PWSA | USA.This podcast gives the latest news in research, advocacy, and family support by bringing together staff, volunteers, PWS treatment specialists, biotech and pharmaceutical representatives, caregivers, family members, and individuals with PWS. Our goal is to connect education, awareness, and resources with those living with PWS and their supporters. Join us in our mission to enhance the quality of life and empower those affected by Prader-Willi syndrome.
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Contact path
Verified email
Booking probability
35%
Guest openness
Selective
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Signup to Generate a PitchWelcome to PWS United, a podcast for the Prader-Willi Syndrome community, brought to you by PWSA | USA.This podcast gives the latest news in research, advocacy, and family support by bringing together staff, volunteers, PWS treatment specialists, biotech and pharmaceutical representatives, caregivers, family members, and individuals with PWS.
PWS United is hosted by PWSA | USA. The show has published 110 episodes to date.
Recent episodes include "Physical Therapy Fundamentals for PWS" (14 October 2026, 53 minutes), "Ep108: Newborn Screening and Florida's Sunshine Genetics Act" (29 September 2026, 36 minutes), and "Ep107: Belonging, Intimacy, and Sexual Health with PWS" (15 September 2026, 30 minutes).
PWS United publishes roughly every two weeks, with episodes averaging 43 minutes across 110 episodes.
Booking probability for PWS United is 35%, and the host is rated Selective on guests. PWS United requires a Pod Score of 80 or higher. PWS United's contact route on record: verified email.
The strongest fits for PWS United are Family & Social Services. PWS United has a business audience.
PWSA | USA hosts PWS United, a business show with 110 episodes published.
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Episode #110
We spoke with two incredible physical therapists and PWS moms for this week's episode. Janice Agarwal and Abigail Ogilbee spoke in depth about the early years of Prader-Willi syndrome, hypotonia, and how physical...
Episode #109
Representative Adam Anderson joined the podcast to discuss newborn screening and the Florida Sunshine Genetics Act, Florida’s innovative voluntary research program using whole-genome sequencing as an additional newborn...
Episode #108
Successful and effective conversations on sexual health include discussions on intimacy, belonging, safety, friendships, consent, and so much more. These conversations may feel intimidating for parents and caregivers...
Episode #107
PWS United is celebrating 2 years of podcasting! With over 100 episodes, there's a lot to celebrate! This week's episode is a look back at the previous year of episodes (check out EP56: Celebrating One Year of...
Episode #106
PWSA | USA's Director of Community Development, Melanie Zalman, sat down with caregiver Shelley Smith to shine a light on the lasting impact of thoughtful planning, enduring love, and the legacy that one family can...
Episode #105
This episode is a re-air from August of 2025 on the topic of planned giving and leaving a lasting legacy with PWSA. August is Make-a-Will Month, and we have some new resources, like our legacy tips, on the how and why...
Episode #104
The PWS Roadshow is a series of events throughout the Pacific Northwest, put on by the Washington/Oregon chapter of PWSA and sponsored by Soleno Therapeutics, the makers of VYKAT XR, the only FDA-approved treatment for...
Episode #103
The latest in PWSA | USA events and PWS news in research, family support, and advocacy. 24 Hour Crisis Line: 941-312-0400 Join our Newsletter - Prader-Willi Syndrome Association | USA Pulse Header The Road to the...
Episode #102
PWS Moms, Jen Garzia (mom to Rocco, 22), Denise Servais (mom to Maya, 22), and Elaine Towle (mom to James, 40) share the challenges, successes, and timelines of helping their loved one transition into adulthood...
Episode #101
The latest in PWSA | USA events and PWS news in research, family support, and advocacy. 24 Hour Crisis Line: 941-312-0400 Pulse Header 2027 PWSA | USA United in Hope National Convention - Prader-Willi Syndrome...
Episode #100
This episode is loaded with important information for your school-aged loved one with PWS. Destiny Pacha, PWS education specialist and IEP consultant, gathered questions from parents and caregivers in the community...
Episode #99
The latest in PWSA | USA events and PWS news in research, family support, and advocacy. 24 Hour Crisis Line: 941-312-0400 Pulse Header 2027 PWSA | USA United in Hope National Convention - Prader-Willi Syndrome...
Episode #98
<p >Father's Day is almost here (June 21), and we're celebrating with two incredible dads from the PWS community. PWSA | USA's Director of Development Melanie Zalman and Fundraising Coach Katie Martinez sat down with...
Episode #97
<p>The latest in PWSA | USA events and PWS news in research, family support, and advocacy. </p> <p>24 Hour Crisis Line: 941-312-0400</p> <p>Pulse Header</p> <p>Enjoy Summer with this List of Fun Activities...
Episode #96
<p>We’re excited to share our latest Sibling Advocacy episode on PWS United. In this ongoing series, we talk with siblings about how they show up for their loved ones with PWS, whether at the kitchen table, at school...
Episode #95
<p>PWS advocates had an incredible experience in Washington, D.C., this past May 4-6. From policy deep dives and meetings with congressional representatives, to cocktail meetups and seeing old friends, it was a busy...
Episode #94
<p>The latest in PWSA | USA events and PWS news in research, family support, and advocacy. </p> <p>24 Hour Crisis Line: 941-312-0400</p> <p> </p> <p>Pulse Header </p> <p>The Importance of PWS Awareness Day - PWSA | USA...
Episode #93
<p>For this episode we brought in Lynn Garrick, PWSA | USA's Medical and Research Coordinator, mom to John (living with PWS, and the woman behind Ask Nurse Lynn to talk about behavior and psychiatric issues. We learn...
Episode #92
<p>Another PWS Awareness Month (May 1-31) has arrived and we're excited to continue spreading awareness, information, and support for our loved ones with PWS! In this episode, PWSA | USA's Communications, Advocacy, and...
Episode #91
<p>Today’s episode features two more members of our new equity committee, Wordna Meskheniten and Dhivya Venkataraman, along with PWSA CEO Stacy Ward, PWSA Board Member and PWS mom, Dini Rao, and Marketing and...
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