Hosted by Unknown Host · EN
Established thought leaders with verified media credentials.
Living with XLH explores the challenges and issues of navigating through a diagnosis of the rare, life-long condition, X-linked Hypophosphatemia (XLH). You'll hear from paediatric and adult XLH specialists, as well as from people living with XLH on their different patient perspectives from children, teenagers and adults, plus their family members.
Unknown Host hosts Living with XLH.
This week, Dr Jessica Sandy explores the full landscape of healthcare transition (HCT) in X‑linked Hypophosphataemia (XLH). Drawing on clinician surveys, international consensus guidelines, and emerging Australian resear
This week,Associate Professor Mihiri Silva, speaks about the impact of XLH on teeth and oral health care. A/Prof Silva speaks on preventing and managing dental impacts: enamel pain/abscesses 3.treatment planning and fami
This week, Sandy and Naomi speak with Advanced Exercise Physiologist and Co-Chair International Clinical Exercise Physiology Network, Luke Snabaitis, about exercise as medicine..... Topics discussed: Benefits of movement
This week, Naomi and Sandy speak with Suzanne, Royce, Angela, Georgia and Eli--three generations, each with unique experiences and perspectives on life with XLH—and life as part of an XLH family! Topics discussed: Growin
This week, XLH Australia President Sandy Bevc and XLH Australia Vice President Naomi Ford speak with their mothers about their experiences parenting a child with a rare condition. Topics discussed: The journey to diagnos
This week, XLH Australia President Sandy Bevc and Vice President Naomi Ford are joined by Prakalp Sudhakar who is the founder and chair of XLH India. Topics discussed: XLH journey as a spontaneous case Living healthy XLH
Angela
AVP of Management Liability Claims & Counsel · IAT Insurance Group
1 appearance on this show
Eli
CEO · Medford Chamber of Commerce
1 appearance on this show
Georgia
wedding celebrant · Etre Marie
1 appearance on this show
Royce
Grogg’s Traditional Irish Pub
1 appearance on this show
Suzanne
Speech and Language Therapist · Corner Market
1 appearance on this show
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Living with XLH is hosted by Unknown Host. The show is categorised under Health (Medicine) and has published 0 episodes.
Living with XLH regularly covers Health, Medicine. It sits in the Health category, with a Medicine focus.
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Episodes of Living with XLH average 31 minutes. a focused format where a clear narrative arc and tight preparation matter most.
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