Hosted by Gavin Giovannoni · EN · 160 episodes
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MS-Selfie is a self-help resource for people with multiple sclerosis gavingiovannoni.substack.com
Gavin Giovannoni hosts MS-Selfie, a health show with 160 episodes published.
This Swedish study below explains why I keep repeating myself, i.e. ‘flip the pyramid’ and ‘smouldering MS is the real MS’. The Swedes have investigated how different intensities of initial MS treatments impact long-term
If you don’t have advanced MS, you may find the contents of this newsletter upsetting. It is not for everyone. Only read on if you want to know about managing advanced MS. Question I am at EDSS 8 and need to get my affai
I am sure many of you won’t want to know about the underbelly of living with advanced MS. As pwMS become more disabled, complications of being immobilised start to appear. The one that worries all HCPs working with patie
If you have multiple sclerosis (MS) and are on chronic immunosuppression, you need to check your medical records to make sure you have had the measles vaccine as a child. Due to vaccine hesitancy, MMR (measles, mumps, an
In response to comments from yesterday’s podcast and newsletter, I have prepared a more detailed analysis of the issues supporting gender-specific MS services. I hope this clarifies things better. Historically, the clini
Last week, a colleague sent me the publication below (van Laar et al., 2024). The publication highlights that while gender equality efforts traditionally focus on women, including men is essential for achieving lasting s
Question Prof G, could you do an article on what is going on with tolebrutinib in the States? Having a hard time processing the FDA rejection letter. Not sure what this means for the field. NOTE: General Substack newslet
I keep getting pushback from people, including many colleagues, when I claim that the Epstein-Barr virus (EBV) is the cause of MS. This claim is based on a large body of epidemiological studies over the last 20 years and
Several subscribers have asked me to comment on the new classification system for multiple sclerosis (MS) published last month in the journal Brain, which uses MRI and serum neurofilament levels. One person asked whether
Sylvia found us, and that is the primary learning point of this case study. Sylvia was diagnosed with MS two months into an internship with an investment bank in London. She probably had an episode of optic neuritis when
24th December 2025, Byfield, Northamptonshire Mary lives alone. Her husband has long departed; he filed for a divorce and left the marital home more than a decade ago when Mary had to stop working. Mary has two daughters
If you are a regular MS-Selfie reader, you will know that I am a proponent of the Epstein-Barr virus (EBV) theory of multiple sclerosis (MS). I am convinced that EBV is the cause of MS. EBV is necessary but insufficient
People with MS can report alterations of consciousness, self-perception, and reality testing. Among these neuropsychiatric phenomena, dissociative states—ranging from transient feelings of unreality to chronic depersonal
I just received a howler of an email from an MS-Selfie reader accusing me of neglecting people with primary progressive MS (pwPPMS) and of being a charlatan for running a subscription model. They concluded by asking me t
I have just returned from a lecture tour of Canada, which included four cities in four days and 12 speaking arrangements. My host's hospitality and kindness were exceptional. Thank you, thank you. I felt appreciated. I h
Do we need to challenge the dogma that traditional MRI is good enough to monitor MS? Our current treatment target in MS is no evident inflammatory disease activity or NEIDA. In other words, there should be no relapses or
A fact worth knowing Did you know that people with MS who have a vascular comorbidity (smoking, obesity, hypercholesterolemia, hyperlipidemia, hypertension and/or established vascular disease) need to use a walking stick
The current dogma that is emerging in the field of immunology and multiple sclerosis (MS) is that a prophylactic EBV vaccine will create an older population of individuals susceptible to later wild-type EBV infection as
My prediction is that we will prevent multiple sclerosis (MS) by accident, i.e. as a secondary outcome to a broader public health intervention. Many stakeholders think we can run a randomised controlled EBV vaccination t
I have written about uncertainty and how it affects the minds of people with chronic diseases such as MS (please see ‘Uncertainty associated with MS: are you comfortable with it?’, 20-Apr-2024). Uncertainty has a dark un
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MS-Selfie is hosted by Gavin Giovannoni. The show is categorised under health (fitness) and has published 160 episodes.
MS-Selfie has published 160 episodes.
MS-Selfie regularly covers health, fitness, medicine. It sits in the health category, with a fitness focus.
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