Living With Cystic Fibrosis

Hi everyone,  The Bonnell Foundation’s mission has always been deeply personal. As we celebrate our Sweet 16 Night of Hope Gala on September 19th , it’s a perfect time to reflect on why this work matters so much...

Friends for years and with CF as their connection, Laura and Petrina have figured out how to raise CF awareness across the world. How does cystic fibrosis care compare between Australia and the United States? Host Laura...

Luck of the Irish. Irish international amateur golfer David Howard doesn't seem to need luck with all the talent he has. We had an inspiring conversation about chasing big dreams while living with cystic fibrosis. When...

Dreams and Determination: Meet four Inspiring students, Living with cystic fibrosis. One of the greatest joys of The Bonnell Foundation is helping young adults living with cystic fibrosis pursue their educational...

I thoroughly enjoy doing my podcasts. It’s the one thing I truly miss from my television news reporting days — interviewing extraordinary people every single day. Through The Bonnell Foundation, I now host a weekly...

Jon Gay and I had a great time recording this podcast because we not only talked about podcasting, but also reflected on our years in the broadcast business and what people should know before starting a podcast of their...

<p>“Take in your final breath before your first new one.” Those were the words Jillian heard before her double lung transplant—words that would mark the end of one life chapter and the beginning of another.</p>...

<p>Chrisy and Dr. Kingzett, two women I met when we were all trying to raise our rare voices a little louder.</p> <p>Christine “Chrisy” Klavitter and Dr. Kristen Kingzett are both rare disease advocates, but more...

<p>“Behind every breakthrough are countless failures no one ever sees—but that’s exactly what makes progress possible.” Dr. Thomas Kaiser.</p> <p>When I have scientists on the podcast: they’re some of the coolest...

<p>Living Fully with CF: Christopher Cornejo’s Journey from Diagnosis to Avatar</p> <p><br> This fast-moving and deeply engaging conversation features Christopher Cornejo, who brings a fresh and powerful voice to the...

<p>A mother, advocate and one woman's global fight for access. Beth Vanstone is working to ensure rare disease patients don’t have to wait for the treatments they need to survive.</p> <p>Sometimes the most powerful...

<p>Bridging Two Countries, One Mission: Cesar and Nora Hernandez Fight for Spanish-Speaking CF Families</p> <p>“When Alex was diagnosed, we felt fear and responsibility. If we had access to information in Spanish, other...

<h2>Finding Strength After Loss: A Conversation with Margarete Cassalina</h2> <p>I first met Margarete Cassalina when we were hosted for dinner by Bob Emmelkamp at the North American Cystic Fibrosis Conference (NACFC)...

<p>Education, connection, and community are at the heart of our CF community.</p> <p>On Saturday, April 18th from 11:00 a.m. to 1:30 p.m. we gathered at the Next Step Gallery in Ferndale. Set in a bright gallery space...

<p>“Being a CF aunt has shaped so much of my life. Now I get the opportunity to turn that love and connection into helping even more people at Breathe Strong CF." </p> <p>Julie Dunn Eichenberg didn’t just find the...