Lewy Body Roller Coaster

Welcome Megan Ferguson-Koci as she shares her struggle getting diagnosed as a women in her 40’s and being told it’s just woman problems….sadly we have heard this from so many other women. She shares her journey and how...

This week, welcome Dr. Jason Cohen. Dr. Cohen is a dementia specialist who answered many of our burning questions about LBD. We are sure some of our questions to him are some each of you would have asked. He said he...

This week we welcome six individuals who attend at least one of our support group zoom meetings. We wanted them to share with you all the power of attending a support group. Our hope is you hear from these amazing...

We are back after a much needed break to handle many personal issues. Thank you all for your continued patience. Just as LBD is a roller coaster ride, so has been our lives been the last few months. A big shout out to...

Podcast Linda is taking 2 weeks off for her birthday…so enjoy the replay of Lewy Terms Defined part 2 with Dr. Sara . Just a reminder- we are not giving medical advice, merely sharing our experiences. This week, Sara...

Just a reminder- we are not giving medical advice, merely sharing our experiences. This week, Sara returns to help us talk about the many terms you may hear that relate to some aspect of Lewy Body Dementia. When you...

Welcome Back Podcaast Family! This week, we share our thoughts on whether there are stages of LBD. There are so many different sites that speak of anywhere from 3-7 stages. We give our two cents on stages and then...

This week we continue part 2 as Curry shares how he is feeling and discussed the new hallucinations he is having and how he is feeling overall including not remembering visitors. We also discuss compulsive behaviors...

This week Curry shares how he is feeling and discussed the new hallucinations he is having and how he is feeling overall including not remembering visitors. We also discuss compulsive behaviors people with LBD may have...

Hello Everyone! Thank you for your patience. Curry shares this week how he has been on a decline for the last few months and shares, in details, how Lewy is affecting him right now. We have a special appearance from his...

This week, Curry shares with us his and his wife Linda's experience going to a funeral home to plan their funerals in advance so their children did not have to later on. He shares how he felt during the process and why...

This week is part three of a three part series. We decided to ask participants form one of our weekly zoom support meting if we could record the meeting and share with you all so you can hear how a meeting goes, what...

This week is part two of a three part series. We decided to ask participants form one of our weekly zoom support meting if we could record the meeting and share with you all so you can hear how a meeting goes, what...

This week is part one of a three part series. We decided to ask participants form one of our weekly zoom support meting if we could record the meeting and share with you all so you can hear how a meeting goes, what...

The conversation takes a surprising turn as they detail a series of household disasters that would test anyone's resilience. A massive 90-foot tree fell onto their house during the night, damaging their electrical...