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Hosted by Unknown Host · 🇺🇸 US · EN · 37 episodes
Established thought leaders with verified media credentials.
Just Listen: Voices of PK Deficiency is a podcast about PK deficiency and is intended forpatients, caregivers, providers, and the greater community of people who are impacted by PKdeficiency. Each episode of the Just Listen podcast strives to provide listeners with criticaleducation, the latest scientific updates, and voices from the PK deficiency community. Learnmore about PK deficiency by visiting KnowPKDeficiency.com or connect withKnowPKDeficiency on Facebook: bit.ly/KnowPKD. Join an inclusive community and buildconnections with other hemolytic anemia allies by following @AllyVoicesRising on Instagram.Just Listen: Voices of PK Deficiency is sponsored by Agios Pharmaceuticals Inc. VisitAgios.com to learn more.This podcast is intended for informational and educational purposes only and is not intended asmedical advice. Please speak with your healthcare professional before making any treatmentdecisions.
Unknown Host hosts Just Listen: Voices of PK Deficiency Podcast, a health show with 37 episodes published.
This special crossover episode brings together advocates from PK deficiency, thalassemia, and sickle cell disease to share insights from the Red Cell Revolution and the powerful connections formed across rare hemolytic a
On this episode of 'Just Listen, Voices of PK Deficiency,' host Dr. Rachel Grace is joined by patient advocate leaders Tamara Schryver of Thrive with PKD and Alejandra Watson of the PKD Foundation to discuss the newly av
On this episode, Dr. Rachael Grace is in conversation with Dr. Sujit Sheth about iron overload. You'll learn about iron overload and why it occurs in pyruvate kinase deficiency, explain the potential complications as wel
Join Dr. Rachael Grace as she interviews Dr. Eduard van Beers, a leading expert in rare anemia including Pyruvate Kinase (PK) deficiency. They discuss the clinical challenges, benefits, and complications associated with
On this episode of Just Listen: Voices of PK Deficiency, host Dr. Rachel Grace interviews Dr. Andreas Glenthøj, a hematologist from Copenhagen University Hospital, about his journey into genetic red blood cell disorders
On this episode, guest host Janie Davis, Director of Patient Advocacy at Agios Pharmaceuticals, discusses the Life Stage Model initiative with patient advocacy leaders, Tamara Scriver and Alejandra Watson. They delve int
On this episode of Just Listen: Voices of PK Deficiency, guest host Janie Davis (Director, Patient Advocacy at Agios) is joined by special guests Tamara Schryver, Jill Welle, and Alejandra Watson to discuss the impact an
his episode, Dr. Rachael Grace welcomes back Tamara Schryver, PhD, RD, President of Thrive with PK deficiency, to discuss the essential role of nutrition and physical activity for individuals with PK deficiency. They exp
On this episode, host Dr. Rachel Grace interviews Dr. Satheesh Chonat, a pediatric hematologist and expert in red cell disorders. They discuss Dr. Chonat's career path and focus on the complexities of managing anemia in
On this episode of 'Just Listen, Voices of PK Deficiency,' host Dr. Rachel Grace is joined by patient advocate leaders Tamara Schryver of Thrive with PKD and Alejandra Watson of the PKD Foundation to discuss the newly av
On this episode, Dr. Rachael Grace talks with the King family. Jennifer and Jerry King have been raising William and Lily. Both have pyruvate kinase deficiency and we discuss how they've managed the disease with their tw
On this episode, Dr. Rachael Grace talks with Jessica Kellar and her teenage son Travis. They discuss Travis' diagnosis, actively involving him in his own care and how to navigate life as a teenager with pyruvate kinase
What does it mean when a parent has pyruvate kinase deficiency? On today's episode we welcome back Nathan Thompson, a father with PK Deficiency. He has two daughters. He's joined today by his daughter Zoe. Here, we learn
On this episode, Dr. Rachael Grace is in conversation with Carl Lander, Chair of the Steering Committee for the Peak Registry and International Collaboration Director of Thrive with Pyruvate Kinase Deficiency. Here they
On this episode, Dr. Rachael Grace is in conversation with Claire Egan, Senior Genetic Counselor with InformedDNA, to talk all about genetics. SHOW DESCRIPTION Just Listen: Voices of PK Deficiency is a podcast about Pyru
Dr. Rachael Grace returns with patient advocate (and PK Deficiency TikTok influencer) Karla Chichester. On this episode, Dr. Grace and Karla dispel some of the biggest myths surrounding Pyruvate Kinase Deficiency. Origin
On this episode, Dr. Rachael Grace is in conversation with Dr. Sujit Sheth about iron overload. You'll learn about iron overload and why it occurs in pyruvate kinase deficiency, explain the potential complications as wel
Our guest today is Dolores Dumas. Dolores is a 73-year-old living with PK deficiency, and was diagnosed as a teen with nonspherocytic hemolytic anemia. During a visit with a new hematologist, she received a definitive di
What does it mean when a parent has pyruvate kinase deficiency? On today's episode we welcome back Nathan Thompson, a father with PK Deficiency. He has two daughters. He's joined today by his daughter Zoe. Here, we learn
On today's episode, we travel to New Orleans for a discussion about aging with pyruvate kinase deficiency (PKD) with returning guests Jill Welle and Tamara Schryver. Janie Davis, Associate Director Patient Advocacy at Ag
Dr. Jennifer King
board-certified sports medicine physician, former NFL cheerleader, lead author of the AAP policy statement on cheerleading injuries · King Integrative Personalized Lifestyle Medicine
1 appearance on this show
Nathan Thompson
Assistant Women’s Tennis Coach · Assessment Systems Corporation
2 appearances on this show
Carl Lander
Thrive
1 appearance on this show
Claire Egan
InformedDNA
1 appearance on this show
Janie Davis
Agios Pharmaceuticals
1 appearance on this show
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Just Listen: Voices of PK Deficiency Podcast is hosted by Unknown Host. The show is categorised under health (fitness) and has published 37 episodes.
Just Listen: Voices of PK Deficiency Podcast has published 37 episodes.
Just Listen: Voices of PK Deficiency Podcast regularly covers health, fitness, medicine. It sits in the health category, with a fitness focus.
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Episodes of Just Listen: Voices of PK Deficiency Podcast average 29 minutes. a focused format where a clear narrative arc and tight preparation matter most.
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