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Hosted by Hope in Focus · 🇺🇸 US · EN · 12 episodes
Established thought leaders with verified media credentials.
The Hope in Focus Podcast, hosted by Ben Shaberman, brings monthly stories and insights to the Leber congenital amaurosis (LCA) and inherited retinal disease (IRD) community. Together, we discuss personal stories, research and scientific updates—including gene therapy and drug development—tools and resources that support accessibility and independence, and insights to help families better understand early-onset vision loss.Hope in Focus is dedicated to generating awareness, raising funds for research, and providing support, education and outreach to the LCA and IRDs.
Hope in Focus hosts Hope in Focus Podcast, a education show with 12 episodes published.
Dr. Jason Comander is the Ayub Family Chair in Ophthalmology and Director of the Inherited Retinal Disorder Service at Mass Eye and Ear. He has led several groundbreaking clinical trials, including delivering the first c
In this episode, we sit down with emerging country singer-songwriter Sarah Hardwig, who was diagnosed at just five months old with LCA10 CEP290. Sarah’s vision loss has never stopped her from pursuing her passion for mus
In this episode, we’re joined by Beth, an education consultant with the Bureau of Education Services for the Blind at the Connecticut Department of Aging and Disability Services. With more than 20 years of experience as
Vivien Hillgrove led a remarkable 50-year career as a film editor for box office hits such as Amadeus, Blue Velvet and The Right Stuff. However, when she began losing her sight to age-related macular degeneration (AMD),
Dr. Ashley Winslow is the CEO and Chief Scientific Officer of Odylia Therapeutics, a nonprofit biotech organization accelerating gene therapies for rare diseases, including Leber congenital amaurosis (LCA). Under her lea
Dr. Shannon Boye is the co-founder and Chief Scientific Officer of Atsena Therapeutics, a gene therapy company advancing a treatment for LCA1 (GUCY2D), with a Phase 3 clinical trial coming soon. She is also a professor a
Joining Ben Shaberman is Brett Devloo—blind skateboarder, creative force, and living proof that identity doesn’t disappear when vision does. After suddenly losing his sight to Leber’s Hereditary Optic Neuropathy (LHON),
Join Ben Shaberman as he speaks with Nicolai Priebe and Eric Brinkman about the profound impact their guide dogs, Winsome and Charlie, have had on their daily lives. Nic shares how Winsome has given him increased confide
Join Ben Shaberman with Jeanyne Gembarski, Region Puppy Instructor in the Puppy Raising Program, and Annemarie Seifert, volunteer Puppy Raiser, both from Guiding Eyes for the Blind, as they take you behind the scenes of
In this episode of the Hope in Focus Podcast, host Ben Shaberman is joined by Kara Fick, Director of Patient Advocacy at Atsena Therapeutics, and Andy Bolan, Director of Patient Advocacy at Sepul Bio. Both Kara and Andy
In this episode of The Hope in Focus Podcast, host Ben Shaberman sits down with Elle St. Arnaud and Jack Morris for an honest and engaging conversation about living with an inherited retinal disease. Elle, who has LCA, a
In this inaugural episode, host Ben Shaberman talks with Laura Manfre and David Brint—founders of two leading organizations in the LCA space. Laura is the co-founder of Hope in Focus and a current board member of the Fou
Jack Morris
AI Researcher and Cornell CS PhD Student · Meta
1 appearance on this show
Beth
Bureau of Education Services for the Blind at the Connecticut Department of Aging and Disability Services
1 appearance on this show
Ashley Winslow
Odylia Therapeutics
1 appearance on this show
Shannon Boye
Atsena Therapeutics
1 appearance on this show
Jeanyne Gembarski
Guiding Eyes for the Blind
1 appearance on this show
Andy Bolan
Sepul Bio
1 appearance on this show
Kara Fick
Atsena Therapeutics
1 appearance on this show
Laura Manfre
Hope in Focus
1 appearance on this show
David Brint
Foundation for Retinal Research
1 appearance on this show
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Hope in Focus Podcast is hosted by Hope in Focus. The show is categorised under education and has published 12 episodes.
Hope in Focus Podcast has published 12 episodes.
Hope in Focus Podcast regularly covers education. It sits in the education category.
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Episodes of Hope in Focus Podcast average 38 minutes. a focused format where a clear narrative arc and tight preparation matter most.
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