Hosted by FIECON · 🇺🇸 US · EN-GB · 16 episodes
Established thought leaders with verified media credentials.
In our series of podcasts, FIECON team members engage with patient advocates and thought leaders to explore the burden, unmet needs, patient journey, and potential future treatments for specific diseases, with the aim of gaining a deeper understanding of the patient's perspective, particularly for rare diseases. At FIECON, we are dedicated to ensuring that life-changing treatments reach the patients who truly need them, while also increasing awareness and amplifying the patient voice to make a meaningful difference.
FIECON hosts FIECON Patient Perspectives, a science show with 16 episodes published.
In the latest episode of the “Patient Perspectives” Podcast, Karl Freemyer, Head of BD at FIECON, a Herspiegel company, speaks with Simon Anthony Richey, a patient living with idiopathic pulmonary fibrosis (IPF). Simon’s
In the latest episode of “Patient Perspectives” Podcast, Karl Freemyer, Head of BD at FIECON, a Herspiegel company, talks to Chris Wade, a patient living with chronic lower back pain, whose life changed after a car accid
In this episode of, Daniel Evans , HEOR Associate at FIECON, speaks with Charlotte Keys, a patient advocate, whose son Lucas was diagnosed with Citrullinaemia Type 1, and Jonathan Alexander Gibson, Campaigns Lead at Meta
In this episode, Tyler Piazza, BD Director at FIECON, hosts an insightful interview with Kevin Wake, CMR, CHW, M.S., a sickle cell disease patient advocacy leader and a health outcomes industry expert. Kevin, who was dia
In this episode Karl Freemyer, BD director at FIECON, is speaking with Emma Chaffin about her experience living with the metastatic breast cancer as a biopharmaceutical executive. Emma is a resilient breast cancer surviv
Von Hippel-Lindau syndrome (VHL), is an inherited condition that brings about tumors in various organs, particularly hemangioblastomas, which are blood vessel tumors found in the brain, spinal cord, and retina. Listen to
In this podcast, Lily Mumford talks to Lauren Weinberg, Senior Associate at FIECON, about her patient journey, experience living with LHON, and how losing her vision has impacted her life. Leber hereditary optic neuropat
In this podcast, David Robins talks to Lauren Weinberg, Senior Associate at FIECON, about the patient journey, his experience as the father of Lexi who lives with Fibrodysplasia Ossificans Progressiva (FOP), and as a fam
Erika Stariha is the mother of the first child in Slovenia diagnosed with SATB2-associated syndrome (SAS), as well as the founder and president of SATB2-Europe. SATB2 Europe's aim is: “To improve quality of life for indi
Juliette Vila Sinclair-Spence is a passionate Acanthamoeba keratitis (AK) Warrior and Rare Disease Patient Advocate as well as the Founder and Chairwoman of Acanthamoeba keratitis (AK) Eye Foundation. With her patient vo
José Ángel Aibar became involved in the activities of the Dravet Syndrome Foundation, shortly after one of his sons was diagnosed with Dravet syndrome. He has served as President and CEO since June 2018. José is also a m
World Orphan Drug Congress panel discussion November 2021 "Access for rare diseases - how to navigate conflict, compromise and collaboration" with panellists - Karl Freemyer, Head of Business Development - FIECON (host)M
Pompe disease is a rare (estimated at 1 in every 40,000 births), inherited and often fatal disorder that disables the heart and skeletal muscles. It is caused by mutations in a gene that makes an enzyme called acid alpha
Chris and Helen Bedford - Gay are the founders and patient advocacy leaders at FOP Friends charity. In 2009 their first child, Oliver, was diagnosed with FOP, aged just one. FOP Friends’ aim is to further research into F
Vince Nicholas and Paul Pozzo are patient advocacy leaders at the UK ATTR amyloidosis Patient Association. Each live with a variant of the rare disease amyloidosis; ATTR (transthyretin) amyloidosis and wild-type amyloido
In this podcast, Patient X talks to us about her patient journey and her experiences, as both a patient and patient advocacy leader. Five years ago, a high impact event led to Patient X being diagnosed with chronic migra
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To pitch FIECON Patient Perspectives, visit http://www.fiecon.com for contact information, then craft a tight one-paragraph hook that ties your expertise to a gap in their recent science coverage.
FIECON Patient Perspectives is hosted by FIECON. The show is categorised under science (life) and has published 16 episodes.
FIECON Patient Perspectives has published 16 episodes.
FIECON Patient Perspectives regularly covers science, life. It sits in the science category, with a life focus.
FIECON Patient Perspectives is accessible for guests with genuine science expertise. A personalised, episode-aware pitch will still outperform a generic one every time.
FIECON Patient Perspectives hasn't explicitly signalled guest openness in recent episodes. That doesn't rule out pitching. your hook just needs to be especially compelling and relevant to their recent content.
Episodes of FIECON Patient Perspectives average 29 minutes. a focused format where a clear narrative arc and tight preparation matter most.
Our data rates FIECON Patient Perspectives's guest bar at 80/100 (Premium tier). Established thought leaders with verified media credentials. Sign in to PitchCentric to see how your own Pod Score compares against this show.
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