science
Hosted by FIECON · science · EN-GB · 16 episodes
In our series of podcasts, FIECON team members engage with patient advocates and thought leaders to explore the burden, unmet needs, patient journey, and potential future treatments for specific diseases, with the aim of gaining a deeper understanding of the patient's perspective, particularly for rare diseases. At FIECON, we are dedicated to ensuring that life-changing treatments reach the patients who truly need them, while also increasing awareness and amplifying the patient voice to make a meaningful difference.
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Contact path
Public web form
Booking probability
17%
Guest openness
Selective
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Signup to Generate a PitchIn our series of podcasts, FIECON team members engage with patient advocates and thought leaders to explore the burden, unmet needs, patient journey, and potential future treatments for specific diseases, with the aim of gaining a deeper understanding of the patient's perspective, particularly for rare diseases.
FIECON Patient Perspectives is hosted by FIECON. The show has published 16 episodes to date.
Recent episodes include "The patient journey | Idiopathic Pulmonary Fibrosis(IPF)" (11 September 2025, 27 minutes), "The patient journey | Chronic Back Pain" (11 June 2025, 22 minutes), and "The patient journey | Citrullinaemia Type 1" (21 October 2024, 26 minutes).
FIECON Patient Perspectives publishes roughly every few months, with episodes averaging 29 minutes across 16 episodes.
Booking probability for FIECON Patient Perspectives is 17%, and the host is rated Selective on guests. FIECON Patient Perspectives requires a Pod Score of 80 or higher. FIECON Patient Perspectives's contact route on record: public web form.
The strongest fits for FIECON Patient Perspectives are Health & Wellness Services. FIECON Patient Perspectives has a science audience.
FIECON hosts FIECON Patient Perspectives, a science show with 16 episodes published.
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FIECON Patient Perspectives
<p>In the latest episode of the “Patient Perspectives” Podcast, Karl Freemyer, Head of BD at FIECON, a Herspiegel company, speaks with Simon Anthony Richey, a patient living with idiopathic pulmonary fibrosis...
FIECON Patient Perspectives
<p>In the latest episode of “Patient Perspectives” Podcast, Karl Freemyer, Head of BD at FIECON, a Herspiegel company, talks to Chris Wade, a patient living with chronic lower back pain, whose life changed after a car...
FIECON Patient Perspectives
<p>In this episode of, Daniel Evans , HEOR Associate at FIECON, speaks with Charlotte Keys, a patient advocate, whose son Lucas was diagnosed with Citrullinaemia Type 1, and Jonathan Alexander Gibson, Campaigns Lead at...
FIECON Patient Perspectives
<p>In this episode, Tyler Piazza, BD Director at FIECON, hosts an insightful interview with Kevin Wake, CMR, CHW, M.S., a sickle cell disease patient advocacy leader and a health outcomes industry expert.</p> <p> </p>...
FIECON Patient Perspectives
<p>In this episode Karl Freemyer, BD director at FIECON, is speaking with Emma Chaffin about her experience living with the metastatic breast cancer as a biopharmaceutical executive. </p> <p><br>Emma is a resilient...
FIECON Patient Perspectives
<p>Von Hippel-Lindau syndrome (VHL), is an inherited condition that brings about tumors in various organs, particularly hemangioblastomas, which are blood vessel tumors found in the brain, spinal cord, and retina.</p>...
Episode #10
<p>In this podcast, Lily Mumford talks to Lauren Weinberg, Senior Associate at FIECON, about her patient journey, experience living with LHON, and how losing her vision has impacted her life.</p> <p>Leber hereditary...
Episode #8
<p>In this podcast, David Robins talks to Lauren Weinberg, Senior Associate at FIECON, about the patient journey, his experience as the father of Lexi who lives with Fibrodysplasia Ossificans Progressiva (FOP), and as a...
FIECON Patient Perspectives
Erika Stariha is the mother of the first child in Slovenia diagnosed with SATB2-associated syndrome (SAS), as well as the founder and president of SATB2-Europe. <br/><br/>SATB2 Europe's aim is:<br/><br/>“To improve...
FIECON Patient Perspectives
<p>Juliette Vila Sinclair-Spence is a passionate Acanthamoeba keratitis (AK) Warrior and Rare Disease Patient Advocate as well as the Founder and Chairwoman of Acanthamoeba keratitis (AK) Eye Foundation. With her...
FIECON Patient Perspectives
<p>José Ángel Aibar became involved in the activities of the Dravet Syndrome Foundation, shortly after one of his sons was diagnosed with Dravet syndrome. He has served as President and CEO since June 2018. </p><p>José...
FIECON Patient Perspectives
<p>World Orphan Drug Congress panel discussion November 2021 <br/><br/>"Access for rare diseases - how to navigate conflict, compromise and collaboration" with panellists - </p>Karl Freemyer, Head of Business...
FIECON Patient Perspectives
<p>Pompe disease is a rare (estimated at 1 in every 40,000 births), inherited and often fatal disorder that disables the heart and skeletal muscles. It is caused by mutations in a gene that makes an enzyme called acid...
FIECON Patient Perspectives
<p>Chris and Helen Bedford - Gay are the founders and patient advocacy leaders at FOP Friends charity. In 2009 their first child, Oliver, was diagnosed with FOP, aged just one.<br/><br/>FOP Friends’ aim is to further...
FIECON Patient Perspectives
<p>In this podcast, Patient X talks to us about her patient journey and her experiences, as both a patient and patient advocacy leader.</p><p>Five years ago, a high impact event led to Patient X being diagnosed with...
FIECON Patient Perspectives
<p>Vince Nicholas and Paul Pozzo are patient advocacy leaders at the UK ATTR amyloidosis Patient Association. Each live with a variant of the rare disease amyloidosis; ATTR (transthyretin) amyloidosis and wild-type...
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