Bowel Moments

Real talk about the realities of IBD...On the rocks! Hosts Robin and Alicia interview people living with Crohn's disease, ulcerative colitis, or indeterminate colitis (collectively knows as Inflammatory Bowel Diseases or IBD) and the medical providers who care for our community. Join us to meet people affected by IBD- we laugh, we cry, we learn new things, we hear inspiring stories, and we share a drink.

Bowel Moments is a health podcast hosted by Alicia Barron and Robin Kingham, with 170 episodes on record and a Required Pod Score of 80.

Alicia Barron and Robin Kingham hosts Bowel Moments, a health show with 170 episodes published.

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  Episode #170

  VEO-IBD Breakthroughs with Dr. Scott B. Snapper

  Sep 30, 202647 minS1

  Send us Fan Mail Crohn’s disease and ulcerative colitis already feel complicated, but when IBD shows up in a baby or a preschooler, the rules can change fast. We’re joined by Dr. Scott B. Snapper, a leader in pediatric and adult IBD research from Boston Children's Hospital, to unpack very early onset IBD (VEO-IBD) and why some of these cases are driven by single-gene immune disorders rather than the “usual” mix of risks we talk about in inflammatory bowel disease. We get into how Dr. Snapper's work with immune deficiency and mouse models helped reveal clear cause-and-effect pathways, and why that matters for real treatment choices. If a child has IL-10 receptor deficiency, standard IBD medications like anti-TNF therapy may not work, and bone marrow transplant can be curative. We also talk about what happens when transplant isn’t possible right away, including the promise of targeted options like IL-1 blockade, and why certain immune defects respond to very specific therapies. Along the way, we zoom out to the big goal in IBD care: fewer rounds of trial and error, more precision medicine guided by biomarkers from blood, stool, and biopsies. We also dig into whole exome sequencing, insurance realities, and the ethics of genetic information, including the very real fear of future discrimination. Finally, Scott shares how the VEO-IBD Consortium grew into a global resource for clinicians and families through veoibd.org, and why he’s genuinely optimistic about the future of IBD therapy, including better tools for pain and gut-brain symptoms. Subscribe for more real talk about IBD, share this with someone who needs hope, and please leave a rating and review so more patients and caregivers can find the show. VEO-IBD Consortium Dr. Snapper won the Sherman Prize last year VEO-IBD Information from Boston Children's Hospital VEO-IBD Information from the Crohn's & Colitis Foundation- USA Let's get social!! Follow us on Instagram ! Follow us on Facebook ! Follow us on Twitter !

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  Episode #169

  No Guts All Glory with Andrea and Dusty Sibley

  Sep 16, 202652 minS1

  Send us Fan Mail Watching your partner lose their health in real time changes everything and it can happen faster than most people realize. We’re joined by Andrea and Dusty Sibley, who take us from the confusion of early symptoms and ER misdiagnoses to a full colectomy, ostomy life, and the J-pouch surgery path that finally got Dusty back to living the life he wants. Along the way, we talk about the weird moments that stick with you, like being told you “look like you’re dying” when you’re actually healing, or having to use a motorized grocery cart in your 40s because your body simply can’t do more yet. Andrea shares what doesn’t get asked often enough: what it’s like to be the caregiver. We dig into the vows you don’t think about until you’re living them, the nurse-patient dynamic that can take over a marriage, parenting during long hospital stays, and the quiet trauma that caregivers carry while telling themselves they shouldn’t feel that way. Dusty opens up about one of the scariest parts of his hospitalization: blood transfusions, why they felt terrifying at first, and how they became a turning point when his energy and color finally came back. Their story also explains why they started No Guts All Glory, a nonprofit supporting people with Crohn’s disease, ulcerative colitis, and colon cancer through care packages for the hospital-to-home transition, plus kid-friendly ostomy bears and books that help families talk about what’s happening. If you’re searching for real talk on IBD, ostomy surgery, J-pouch recovery, colonoscopy fears, and invisible illness, this conversation brings both the hard truth and the hope. Subscribe, share, and leave a review, then tell us what part of their journey hit closest to home. Links: No Guts All Glory website No Guts All Glory: Stories of Strength podcast- Spotify No Guts All Glory Instagram Let's get social!! Follow us on Instagram ! Follow us on Facebook ! Follow us on Twitter !

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  Episode #168

  Live from FOCUS GI- A GI Nurse And A Young Patient Show How IBD Can Still Be A Full Life

  Sep 2, 202658 minS1

  Send us Fan Mail An 11-year-old looks a microphone in the face and calmly explains ulcerative colitis, colonoscopies, and anxiety like it’s a skill she’s been training for. Penny joins us live to share what diagnosis felt like in fourth grade, what she’s learned about still living a full life, and why the prep can be harder than the procedure. Her honesty about nausea, fear of vomiting, and the way anxious thoughts snowball will sound painfully familiar to a lot of people with inflammatory bowel disease. We’re also joined by Penny’s mom, Sonia, a registered dietitian with digestive health training and an eating disorder specialty. We talk about food labels, restaurant unknowns, and finding a healthy balance that protects both the gut and the mind. Sonia shares what it’s like to be both a clinician and a parent, how mental health support helps, and what it took to advocate for the right testing and the right IBD specialist. Then, still live from the Focus GI conference, we sit down with Grishelda and Rony Valme. Roni is a GI nurse, a creative on the conference media team, and an IBD patient himself. He tells his diagnosis story, breaks down how urgency reshapes travel, and gives the most practical “where do I go” bathroom advice you’ll hear all week. We also dig into a message every new GI provider needs: believe patients, even when scopes and labs don’t match the symptoms. If you want real-world ulcerative colitis and Crohn’s disease coping strategies, patient-to-provider empathy, and practical IBD travel tips, hit play. Subscribe, leave a review, and share this with someone who needs to feel less alone. Links: FOCUS GI Rony and Grishelda Valme's business!- Valme Photography and Design Sonia's practice- Colibri Nutrition Therapy Let's get social!! Follow us on Instagram ! Follow us on Facebook ! Follow us on Twitter !

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  Episode #165

  Old Fashioneds with Deadly Cherries and a Plan To Improve IBD Patient Care with Dr. Corey Siegel

  Jul 22, 202655 minS1

  Send us Fan Mail The fastest way to improve IBD outcomes is not always a new drug. Sometimes it’s a better system and a team that can actually reach you before you end up in crisis. We’re joined by Dr. Corey Siegel , a renowned gastroenterologist and IBD specialist at Dartmouth Hitchcock Medical Center, to unpack what “high-quality inflammatory bowel disease care” looks like when you measure it, stress-test it, and rebuild it around real patient needs. We talk through IBD Qorus, the Crohn’s and Colitis Foundation quality improvement program that defines key standards for Crohn’s disease and ulcerative colitis care and then tracks whether clinics meet them. That leads to a practical, patient-first goal: keeping people out of the emergency department by creating urgent clinic access, proactively supporting high-risk patients, and using better visit workflows that start with the patient’s top concern. These aren’t flashy changes, but they reduce prednisone use, unnecessary CT scans, opioid exposure, and the emotional toll of feeling unheard. Then we zoom out to rural healthcare and specialty access. Dr. Siegel explains RADIUS, a telemedicine “hub-and-spoke” model where community practices connect patients early to a full multidisciplinary IBD team, including behavioral health, nutrition, pharmacy support, and nursing coordination. We also get real about treat-to-target, why symptoms can mislead, and how insurance barriers like prior authorization and step therapy can delay the right biologic or advanced therapy for months. If you want smarter, more human IBD care and concrete ideas you can advocate for, hit play now. After you listen, subscribe, share with a friend, and leave a review so more patients can find these conversations. Links: Dr. Siegel's podcast- Digesting: The Latest in IBD - apple podcasts Spotify option Information on IBD Qorus- Crohn's & Colitis Foundation Information about the BRIDGe Group Let's get social!! Follow us on Instagram ! Follow us on Facebook ! Follow us on Twitter !

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  Episode #164

  How Zach K. Survived Surgeries And Rebuilt His Immune System

  Jul 8, 202646 minS1

  Send us Fan Mail An MRI, a phone call, and four words nobody wants to hear: “You have a perforated bowel.” Zach Koscuik was on the road to a comedy gig when Crohn’s disease forced yet another hard pivot, adding to a 25-year history that includes perianal Crohn’s, fistulas, abscesses, emergency surgeries, biologics, and three ileocolonic resections. We talk with him about what it’s like to grow up sick, manage the stigma that makes people minimize inflammatory bowel disease, and keep showing up to school, work, and life when your body is always negotiating the nearest bathroom. Then the story takes a turn into the world of clinical trials and high-stakes medicine. Zach explains how severe disease and short bowel complications pushed his team toward an autologous stem cell transplant, a process that essentially wipes out and restarts the immune system. We get specific about the testing, chemo, isolation, and the surreal experience of being treated on a cancer floor without having cancer, plus the very real impact of insurance decisions that kept him hospitalized for 43 days. The payoff lands with the kind of news IBD patients barely let themselves hope for: a one-year follow-up colonoscopy that comes back completely clean. We also keep it honest about what remains, including motility issues, joint pain, and the mental aftershocks of medical trauma. Zach closes with a simple challenge for the Crohn’s and colitis community: practice equal empathy, because two people can share a diagnosis and live totally different realities. If this conversation hits home, subscribe, share the episode with a friend, and leave a review so more people living with IBD can find it. Links: Find Zach on Instagram Information on the stem cell trial that Zach did Stem Cell Therapy clinical trial site - Clinicaltrials.gov Let's get social!! Follow us on Instagram ! Follow us on Facebook ! Follow us on Twitter !

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