
Voices of Symposium Part Two
In Part 2, host Kai Sorensen sits down with the Coalition's CEO and Executive Director to unpack the "Seen. Believed." campaign and the growing number of women only now getting diagnosed with hemophilia B

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Hosted by The Coalition for Hemophilia B · 🇺🇸 US · EN · 32 episodes
Established thought leaders with verified media credentials.
Join us in this series as we bring stories, discussions, and insights from influential voices in the hemophilia community directly to your favorite listening device. Please tune in to explore, learn, and connect, finding companionship in shared experiences as we strengthen our community through the power of audio. Unlock the power of understanding hemophilia B. Your Journey, Your Strength.
The Coalition for Hemophilia B hosts Boundless B Podcast, a health show with 32 episodes published.

In Part 2, host Kai Sorensen sits down with the Coalition's CEO and Executive Director to unpack the "Seen. Believed." campaign and the growing number of women only now getting diagnosed with hemophilia B

In Part 1 of this three-part series, host Kai Sorensen walks the halls of the Coalition for Hemophilia B's 2026 Symposium, capturing the reunions, the quiet courage, and the everyday advocates who make this weekend feel

New York State Senator Joseph P. Addabbo, Jr. has been one of the most consistent allies our community has in Albany.

Dr. Douglas Hutchinson, a practicing dentist and father of a son with severe hemophilia B, on a topic many families quietly worry about: dental care.

What if the biggest barrier to care isn’t access but the words we use?

What happens when grief becomes evidence — and evidence becomes a national reckoning?

What happens when life-saving treatment becomes life-altering — and the systems meant to protect families move too slowly to prevent harm?

Holding Space: Grief, Resilience, and Mental Health in the Bleeding Disorders Community with Dr. Mosi Williams

Stronger Together: Building Community at Meetings on the Road with Dr. Whitley Grant-Goodman

Finding Peace During the Holidays: Regulating the Nervous System

What do you do when your baby is born covered in bruises, and no one has answers?

When Kate Bazinsky received the call that a young man with Hemophilia had died by suicide after being denied by substance abuse and mental health treatment, she knew something had to change.

How do you recharge your mental battery before burnout hits?

What does it mean to save a life—not just with medication, but with dignity, opportunity, and hope?

Emergency Advocacy, System Change, and the Founding of Danny’s Dose with Darlene Shelton

What if the secret to resilience wasn’t grit, but awe? In a world of chronic conditions and everyday stress, how can families harness wonder and connection as anchors for strength and healing?

In this special episode of Boundless B, host Kai M Sorensen takes listeners inside the 35th Anniversary Symposium of the Coalition for Hemophilia B.

Healthcare Advocacy: Navigating Policy, Misinformation, and the Power of Storytelling with Alison Betty of alignco

The Power of Patient Stories with Erik Paulsen, Chairman at the Institute of Gene Therapies

Spotlight on our Volunteer of the Year Award Winners
Adam Smith
retired Special Forces Commando and former Special Operations Group officer · Victoria Police Special Operations Group
1 appearance on this show
Robert Friedman
partner in International Trade Group · Fearless Branding
1 appearance on this show
Wendy Wollner
Balancing Life Issues
1 appearance on this show
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Boundless B Podcast is hosted by The Coalition for Hemophilia B. The show is categorised under health (fitness) and has published 32 episodes.
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