health
Hosted by Histiocytosis Association · health · EN-US · 96 episodes
The Beyond the Diagnosis podcast was created by the Histiocytosis Association to give patients, families, caregivers and other members of the Histio Community the opportunity to have access to another educational resource to help them on their histio journey. The podcast provides an additional platform by which listeners can consume information while on the go or if unable to remain in front of a computer for an extended period of time.
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Contact path
Public web form
Booking probability
33%
Guest openness
Selective
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Signup to Generate a PitchThe Beyond the Diagnosis podcast was created by the Histiocytosis Association to give patients, families, caregivers and other members of the Histio Community the opportunity to have access to another educational resource to help them on their histio journey.
Beyond the Diagnosis is hosted by Histiocytosis Association. The show has published 96 episodes to date.
Recent episodes include "Episode 095 - Utilize But Verify - AI in the Rare Disease Journey w/ Dr. Michael Henry" (23 September 2026, 48 minutes), "Episode 093 - Meet the Team: Staff Highlight Series w/ Kristen, Our Chief Program and Development Officer" (22 July 2026, 45 minutes), and "Episode 092 - You Are Not Alone: Mental Health and Peer Support in Rare Disease" (25 June 2026, 53 minutes).
Beyond the Diagnosis publishes roughly monthly, with episodes averaging 42 minutes across 96 episodes.
Booking probability for Beyond the Diagnosis is 33%, and the host is rated Selective on guests. Beyond the Diagnosis requires a Pod Score of 80 or higher. Beyond the Diagnosis's contact route on record: public web form.
The strongest fits for Beyond the Diagnosis are Health & Wellness Services. Beyond the Diagnosis has a health audience.
Histiocytosis Association hosts Beyond the Diagnosis, a health show with 96 episodes published.
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Episode #95
Welcome to Episode 095 of the Beyond the Diagnosis Podcast. Artificial intelligence is changing the way we find, understand, and use medical information—but what does that mean for people living with rare disease? In...
Episode #93
Welcome to Episode 093 of the Beyond the Diagnosis Podcast. In this episode Kathy sits down with Kristen Nesensohn, Chief Program and Development Officer at the Histiocytosis Association, to talk about her journey, her...
Episode #92
Welcome to Episode 092 of the Beyond the Diagnosis podcast! In this episode we’re exploring the often-overlooked mental health impact of rare disease across every stage of the journey, from the uncertainty before...
Episode #91
<p>Welcome to Episode 091 of the Beyond the Diagnosis Podcast. In this episode of Beyond the Diagnosis, Kathy sits down with hematologist Dr. Richard Godby from Mayo Clinic to explore the rapidly evolving role of...
Episode #90
<p>Welcome to Episode 090 of the Beyond the Diagnosis Podcast. In this heartfelt episode, Kristin Aaron shares the inspiring story of her son Jenson, whose joyful spirit sparked the Monkey Grins initiative, bringing...
Episode #89
<p>Welcome to Episode 089 of the Beyond the Diagnosis Podcast. In this episode we sit down with 2024 Histio Student Scholarship recipient Brinda Shukla to hear her powerful journey from a Rosai-Dorfman Disease diagnosis...
Episode #88
<p>Welcome to Episode 088 of the Beyond the Diagnosis Podcast. During Rare Disease Week 2026, we’re shining a spotlight on something that moves our community forward in powerful ways: advocacy. </p><p>On this episode we...
Beyond the Diagnosis
<p>Welcome to Episode 087 of the Beyond the Diagnosis Podcast. In this episode Kathy welcomes Dr. Karen Rech from the Mayo Clinic to discuss her groundbreaking research on Erdheim-Chester Disease (ECD). The conversation...
Episode #86
<p>Welcome to Episode 086 of the Beyond the Diagnosis Podcast. Come along with us in this episode as we share a replay of the HopeCast, originally broadcast on Giving Tuesday 2025. Filled with stories, accomplishments...
Beyond the Diagnosis
<p>Welcome to Episode 085 of the Beyond the Diagnosis Podcast. It’s that time of year where all thoughts shift to gratitude and we wanted to take a moment to express our thankfulness to our histio community for all you...
Episode #84
<p>Welcome to Episode 084 of the Beyond the Diagnosis Podcast. In this episode we’re introducing you to the brand new President of the Histiocyte Society, Dr. Vasanta Nanduri. We talk about how she got involved in...
Episode #83
<p>Welcome to Episode 083 of the Beyond the Diagnosis Podcast. In this episode we’re introducing you to the Histiocytosis Association’s brand new Executive Director, Jen Silvers, as we continue on in our staff highlight...
Beyond the Diagnosis
<p>Welcome to Episode 082 of the Beyond the Diagnosis Podcast. In this episode, we’re exploring the personal journeys of patients and families navigating the complex world of HLH and delving into the transformative...
Beyond the Diagnosis
<p>Welcome to Episode 081 of the Beyond the Diagnosis Podcast. In this conversation, we turn the spotlight on the voice behind Beyond the Diagnosis. With nearly 17 years at the Histiocytosis Association, Kathy...
Beyond the Diagnosis
<p>Welcome to Episode 080 of the Beyond the Diagnosis Podcast. In this conversation, Kathy Wisniewski and Kristin Nesensohn discuss the upcoming Histio Patient and Family Summit, highlighting its significance in...
Episode #79
<p>Welcome to Episode 079 of the Beyond the Diagnosis Podcast. In this episode, we’re sharing a previously recorded webinar that was presented to the histio community just a few months ago. It’s an important and...
Beyond the Diagnosis
<p>Welcome to Episode 078 of the Beyond the Diagnosis Podcast. Listen in as Hank shares his courageous journey from being misdiagnosed, to finding his purpose in life to help others affected by histiocytosis in the most...
Episode #77
<p>Welcome to Episode 077 of the Beyond the Diagnosis Podcast. Curious about the latest research on treating Erdheim-Chester disease (ECD)? In this episode, we’re chatting with Drs. Goyal, Abeykoon, and Acosta-Medina...
Beyond the Diagnosis
<p>Welcome to Episode 076 of the Beyond the Diagnosis Podcast. In this episode we’re bringing you the third in our “Meet the Team,” series where we introduce you to the dedicated individuals working behind the scenes of...
Episode #75
<p>Welcome to Episode 075 of the Beyond the Diagnosis Podcast. We're diving into part 3 of the 2024 HopeCast replay, originally broadcast live on Giving Tuesday in December 2024. This episode is focused on the third and...
Recent guests on Beyond the Diagnosis. Study who booked and why before you pitch.
physician executive, Animal Rescue Fund of The Hamptons
Histiocytosis Association
Mayo Clinic
The Histiocytosis Association
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