What does The Sumaira Foundation do?

The Sumaira Foundation (TSF) is a nonprofit organization founded by Sumaira Ahmed to raise awareness of rare neuroimmune conditions, specifically Neuromyelitis Optica Spectrum Disorder (NMOSD) and Myelin Oligodendrocyte Glycoprotein Antibody-Associated Disease (MOGAD). Established approximately 11 years ago, TSF aims to build patient and caregiver communities, fund research for cures, and advocate for those affected by these conditions. Headquartered in Somerville, MA, TSF focuses on four main areas: raising awareness, building community, supporting research, and advocacy. The foundation provides educational resources, creates support networks for patients and caregivers, and funds research initiatives. TSF also works to influence healthcare policy, particularly for underserved populations. Through partnerships with organizations like the PAN Foundation, TSF enhances its outreach and support for patients and their families.