What does Poland Syndrome Support UK do?

PIP-UK is a UK-based charity established in 2011 to support individuals and families affected by Poland Syndrome, a rare congenital condition. Founded by a mother inspired by her son's diagnosis, PIP-UK aims to raise awareness and provide a central hub for expertise in research, wellbeing, and community support. Operating from Stockport, the charity has grown to offer nationwide services and has received funding from the National Lottery. PIP-UK provides personalized assistance, including one-to-one support, advocacy for improved diagnosis and treatment, and wellbeing programs. They also offer specialized support for children and facilitate community connections through blog posts and social media engagement. The charity focuses on empowering those affected by Poland Syndrome and emphasizes the importance of early diagnosis and consistent treatment paths.