What does Hunter’s Hope do?

Hunter's Hope Foundation is a non-profit organization based in Orchard Park, NY, dedicated to addressing the needs surrounding Krabbe Disease and over 50 related Leukodystrophies. Founded in 1997 by Jim and Jill Kelly after their son was diagnosed with Krabbe Disease, the foundation focuses on raising awareness, providing resources, supporting research, and offering emotional and financial assistance to affected families. The foundation's key initiatives include the Leukodystrophy Care Network, which aims to improve health and quality of life through specialized medical care. They offer various family care programs, such as the Wall of Fame, Wish Gift, and Equipment & Supply Exchange, along with educational support through annual symposiums. Hunter's Hope also advocates for universal newborn screening to enable early detection of these conditions. With a commitment to hope and support, the foundation serves families, medical professionals, and the broader public, fostering a community of care and awareness.