The Disability Myth

Welcome to The Disability Myth! My name is Dominick, and I live with a fatal disease called Spinal Muscular Atrophy. Together, my amazing caretaker, co-host, and best friend, Uriel and I plan to debunk misconceptions, share our personal experiences, and shatter your expectations. We're bringing in experts, thought leaders, and everyday people who are smashing through societal barriers, paving the way for a more inclusive world. Whether you're a person with a disability, or just someone curious about breaking down barriers, The Disability Myth is your go-to podcast!

The Disability Myth is a society podcast hosted by Dominick Joseph Trevethan, with 32 episodes on record and a Required Pod Score of 81.

Dominick Joseph Trevethan hosts The Disability Myth, a society show with 32 episodes published.

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  Episode #1

  Season Premiere

  Sep 25, 202610 minS5

  Welcome back to The Disability Myth! ️ We’re kicking off a new season with a conversation about where The Disability Myth is headed—and we’re excited to finally share what we’ve been working toward. In this season premiere, we talk about recording in our new space, reflect on how far the podcast has come, and share our hopes for its future. But more importantly, we talk about our vision for The Disability Myth becoming something bigger than just a podcast. We want to build a community where disabled people, caregivers, friends, family members, and allies can come together, share their experiences, challenge misconceptions, and advocate for a more accessible and inclusive world. That means exploring the possibility of expanding The Disability Myth into a nonprofit organization focused on advocacy, community, education, and—most importantly—creating a place where people feel like they belong. This is just the beginning. Welcome to the next chapter of The Disability Myth. Follow & connect with us: thedisabilitymyth.org Instagram & Facebook: @thedisabilitymyth

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  Episode #1

  Hear Your Song With Derek

  Mar 16, 20261h 23mS5

  One of the things I (Dom) take most for granted is my ability to communicate—and you probably do too. But what if you couldn’t? What if you tried to talk, but only seemingly arbitrary sounds came out? What if no one believed you when you tried to communicate in the only way you can? On this episode, we have the pleasure of talking with someone who knows exactly what that’s like—Dom’s buddy, Derek. Derek joins us as a co-host as we interview someone who works every day to give children with chronic illness & disabilities a voice through song: Executive Director and Co-Founder of Hear Your Song, Dan Rubins. Together, we explore what it’s like to communicate using assistive technology, the magic behind song production, and even discuss what we’d do if we were lost in space with our arch-nemesis.

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  Episode #9

  Flying High With Soar

  Sep 5, 20251h 11mS4

  What if the only thing standing between you and a life-saving treatment was a price tag? For many living with Spinal Muscular Atrophy, that’s the reality—Spinraza, one of three FDA approved treatments for SMA costs about $425,000 per injection. Beyond the medical challenges, families face crushing financial barriers and questions of accessibility that differ drastically from country to country. This week, we hear from brothers Derek and Justin. Justin lives with SMA type 1, and Derek—his brother and caregiver—has transformed their experience into a mission. He founded SOAR, a nonprofit dedicated to supporting the SMA community by providing community outreach and support. Under SOAR, Derek created the SMA Support Mates Program, which connects kids and young adults with older mentors who know exactly what it’s like to live with SMA. Together, we talk about the urgent fight for affordable treatments, the stark contrast in accessibility between the U.S. and Vietnam, and how community can light the path forward.

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  Episode #8

  Like Mother, Like Son With Victor & Lori McConnell

  Jun 2, 20251h 36mS4

  On the latest episode of The Disability Myth, our friend Victor McConnell returns, but this time, he’s brought someone very special: his mom, Lori! He was born missing an arm. She lost part of her hand in a childhood accident. Together, they talk about growing up with physical differences in different eras, parenting with disability, and how physical differences have impacted their lives as a whole. Plus, we get more 1 on 1 time with Victor to talk about the ongoing battle of pain-management and how we deal with the mental health struggles that come with it. Another great conversation that you don’t wanna miss!

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  Episode #7

  The Autism Voyage: A Deep Dive

  May 19, 202557 minS4

  According to the World Health Organization, 1 in 100 children worldwide live with autism. In this episode, we sit down with the founder of The Autism Voyage, a blog, resource home, and consulting service dedicated to helping families affected by autism navigate the often overwhelming world of finances and insurance. We talk about the real-life challenges families face, the gaps in the system, and how The Autism Voyage empowers parents with the tools, knowledge, and confidence to plan for the future. Plus, we get to hear how Michael Pereira navigated his son Christian’s diagnosis and the advice he has for others in similar circumstances. Whether you're a caregiver, advocate, or just curious, this conversation is filled with insight, compassion, and practical advice.

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