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Hosted by Unknown Host · 🇺🇸 US · EN · 1,000 episodes
Established thought leaders with verified media credentials.
I'm Aware That I'm Rare: the phaware® podcast is devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. Through this series of impactful, insightful and, most importantly, hopeful stories from members of the global pulmonary hypertension community, we hope to further the global #phaware conversation as well as to capture, engage and enable misdiagnosed and undiagnosed PH patients because early diagnosis and treatment can mean the difference between life and death. Topics range from the importance of early diagnosis and global PH awareness, to the impact of clinical trials to how patient support and advocacy are paramount to battling this disease. Learn more about PH at www.phaware.global
Unknown Host hosts I'm Aware That I'm Rare: the phaware® podcast, a health show with 1,000 episodes published.
Pulmonary Hypertension Tried to Shrink Her World. She Made It Bigger. Being prescribed oxygen broke PAH patient, Sherri Odusanya, in a way her diagnosis hadn't. Sleeping beside a roaring machine. Dragging tanks through d
Pulmonary Hypertension Tried to Shrink Her World. She Made It Bigger. Being prescribed oxygen broke PAH patient, Sherri Odusanya, in a way her diagnosis hadn't. Sleeping beside a roaring machine. Dragging tanks through d
Misdiagnosed at 19, Married After Heart Failure and Living Moment to Moment Pulmonary hypertension patient, Kathy Ilano believed she'd never marry. Until she met her husband at her high school reunion. Still recovering f
Misdiagnosed at 19, Married After Heart Failure and Living Moment to Moment Pulmonary hypertension patient, Kathy Ilano believed she'd never marry. Until she met her husband at her high school reunion. Still recovering f
She Was the Caregiver Until Pulmonary Hypertension Made Her the Patient For Christine Ryan, being ill wasn't the hardest part, letting others care for her was. Diagnosed with pulmonary hypertension after years of managin
She Was the Caregiver Until Pulmonary Hypertension Made Her the Patient For Christine Ryan, being ill wasn't the hardest part, letting others care for her was. Diagnosed with pulmonary hypertension after years of managin
The Dream She Lost at 18 and the Child Who Gave It Back One of the first questions Amanda Chickie asked after her pulmonary hypertension diagnosis wasn't about life expectancy, it was about motherhood. The answer devasta
The Dream She Lost at 18 and the Child Who Gave It Back One of the first questions Amanda Chickie asked after her pulmonary hypertension diagnosis wasn't about life expectancy, it was about motherhood. The answer devasta
A New Mother's Greatest Fear: "Am I Going to See My Daughter Grow Up?" When Lisa Harder became a new mom, she never imagined that shortness of breath would lead to a rare, life-altering diagnosis. Lisa shares how uncerta
A New Mother's Greatest Fear: "Am I Going to See My Daughter Grow Up?" When Lisa Harder became a new mom, she never imagined that shortness of breath would lead to a rare, life-altering diagnosis. Lisa shares how uncerta
From Wedding Bells to a Life-Altering Diagnosis Cathleen Harrington was young, athletic, and newly engaged when pulmonary hypertension changed everything. Twenty-one years later, after surrogacy, clinical trials, a lung
From Wedding Bells to a Life-Altering Diagnosis Cathleen Harrington was young, athletic, and newly engaged when pulmonary hypertension changed everything. Twenty-one years later, after surrogacy, clinical trials, a lung
Why a Social Worker Might Be the Most Important Person on a PH Care Team When pulmonary hypertension finally gets a name, fear rushes in fast. Social Worker, Evan Holm, is often the first person patients lean on after th
Why a Social Worker Might Be the Most Important Person on a PH Care Team When pulmonary hypertension finally gets a name, fear rushes in fast. Social Worker, Evan Holm, is often the first person patients lean on after th
Who Cares for the Caregiver When Everyone Else Comes First? Behind every pulmonary hypertension patient is someone quietly running on empty. Laura Camponeschi pulls back the curtain on caregiver burnout — the emotional,
Who Cares for the Caregiver When Everyone Else Comes First? Behind every pulmonary hypertension patient is someone quietly running on empty. Laura Camponeschi pulls back the curtain on caregiver burnout—the emotional, me
Three Generations. One Gene. A Rare Disease She Couldn't Outrun. Dawn Ogden has lived her entire adult life under the shadow of pulmonary hypertension. After losing her sister and watching her father battle the disease,
Three Generations. One Gene. A Rare Disease She Couldn't Outrun. Dawn Ogden has lived her entire adult life under the shadow of pulmonary hypertension. After losing her sister and watching her father battle the disease,
From "Untreatable" to Life-Changing: The New Era of CTEPH Care What happens when patients are told everything looks "normal" but they still can't breathe? Dr. Jenny Yang explains how new testing and team-based care are s
Why "The Walking Guy" Trusts His Therapist as Much as His Cardiologist For PAH patient, Eric Borstein, walking started as a way to survive medication side effects. Now, it has become a way to survive himself. Each step p
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I'm Aware That I'm Rare: the phaware® podcast is hosted by Unknown Host. The show is categorised under Health (fitness) and has published 1,000 episodes.
I'm Aware That I'm Rare: the phaware® podcast has published 1,000 episodes.
I'm Aware That I'm Rare: the phaware® podcast regularly covers Health, Fitness, Medicine. It sits in the Health category, with a fitness focus.
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