
Episode 11: Des
Des is a patient living with diffuse TGCT of the knee who was originally from Singapore before relocating to the United Kingdom. In this episode, Des shares his personal journey navigating two very different healthcare s
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Hosted by TGCT Support · 🇺🇸 US · EN · 10 episodes
Established thought leaders with verified media credentials.
Herding Hope is a podcast all about finding connection, courage, and community in the world of TGCT and rare diseases. Hosted by Sydney and Virginia, each episode explores the shared experiences that unite rare disease patients alongside the unique journeys that make every story powerful. Through honest conversations with patients, clinicians, and advocates, Herding Hope shines a light on what it’s really like to live with TGCT and the hope that grows when stories are shared.Created by TGCT Support, this podcast is a place for learning, listening, and lifting each other up. TGCTSupport.org
TGCT Support hosts Herding Hope: Zebra and TGCT Talk, a health show with 10 episodes published.

Des is a patient living with diffuse TGCT of the knee who was originally from Singapore before relocating to the United Kingdom. In this episode, Des shares his personal journey navigating two very different healthcare s
Show notes
Meet Kelsey, a TGCT warrior from Canada who’s keeping it real about life with a localized TGCT of the knee diagnosis that didn’t go quite as expected. In this episode, she opens up about the shock of diagnosis, the anxie
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Meet Arthur, a patient living with diffuse TGCT of the knee and a passionate advocate as the Lead Representative of TGCT Support France. In this episode, he shares his journey and dives into the power of self-advocacy, s
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Meet Patrick, a patient living with diffuse TGCT of the elbow, who brings a thoughtful and honest perspective to this episode. He shares how he was diagnosed and how growing awareness around TGCT played a key role in his
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RaSheeda lives with diffuse TGCT of the knee and was diagnosed in the late 2000s, a time when treatment options were limited and the condition was often poorly understood. In 2021, she re-experienced symptoms and it was
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Dina, a young mother in the United Kingdom living with TGCT of the knee, shares her journey navigating a complex referral system and prolonged wait times that delayed access to specialist care. Ultimately seeking treatme
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Demi is used to living life in the fast lane as a professional racecar driver but a diagnosis of localized TGCT in her knee forced her to face an unexpected detour. Navigating pain, uncertainty, and recovery, she pushed
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Alex is living with diffuse TGCT of the knee. She was diagnosed four years ago and has faced a two-stage surgery and systemic therapy. Refusing to let TGCT define her, Alex has made it her mission to make it “suck less”
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Woody is a U.S. military veteran living with diffuse TGCT of the knee, diagnosed 6 years ago. After multiple surgeries and systemic therapies, his military career and family life has been reshaped by TGCT. His story is a
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Sydney has diffuse TGCT of the hip, with six prior surgeries and one medication. Sydney describes being diagnosed at 17 years old and how it's shaped the last decade of her life. She describes how finding an expert chang
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Virginia is a patient with diffuse TGCT of the hip. She has had surgery and participated in a clinical trial. Virginia describes her experience with TGCT over the last 8 years and how it impacted her as a young mother an
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To pitch Herding Hope: Zebra and TGCT Talk, visit https://tgctsupport.org for contact information, then craft a tight one-paragraph hook that ties your expertise to a gap in their recent health coverage.
Herding Hope: Zebra and TGCT Talk is hosted by TGCT Support. The show is categorised under health (fitness) and has published 10 episodes.
Herding Hope: Zebra and TGCT Talk has published 10 episodes.
Herding Hope: Zebra and TGCT Talk regularly covers health, fitness, medicine. It sits in the health category, with a fitness focus.
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Episodes of Herding Hope: Zebra and TGCT Talk average 34 minutes. a focused format where a clear narrative arc and tight preparation matter most.
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