Hosted by Jillian Arnold · 🇺🇸 US · EN-US · 68 episodes
Established thought leaders with verified media credentials.
Join me every week as I navigate the ups and downs, and everything in between of the crazy stressful, but always beautiful life of being a rare disease parent.
Jillian Arnold hosts Confessions of a Rare Disease Mama, a kids show with 68 episodes published.
Send us Fan Mail When your child receives a life-altering diagnosis, you leave the hospital with a care plan. ...But no one gives you a coping plan. In this episode, I’m talking about the part no one prepares you for: th
Send us Fan Mail The holidays can feel magical... or overwhelming. For parents of children with medical complexity, special needs, or chronic illnesses, the season often comes with invisible burdens and unspoken expectat
Send us Fan Mail After a four-month break, we’re back and catching up on everything ! In this episode, I sit down with my partner-in-crime (and life), Donald, to chat about what life has looked like lately for our family
Send us Fan Mail Ever feel like the world is just... too much ? Whether it's the endless news cycle, the weight of caregiving, or just the everyday overwhelm, you’re not alone. In this episode, I’m opening up about what
Send us Fan Mail In this casual solo episode, I’m just catching you up on what life has looked like lately over here. From solo parenting while Donald’s been away for job training, to the kids catching colds (because of
Send us Fan Mail In this special episode of Confessions of a Rare Disease Mama , I'm sharing the live audio from a panel I had the honor of moderating at the Global Genes Rare Advocacy Exchange. This conversation dives i
Send us Fan Mail In this solo stream-of-consciousness episode, I’m catching you up on everything happening in our world lately—from the latest updates on Roman and Stella’s treatment journey, to exciting news about my bo
Send us Fan Mail Finding financial support and resources as a rare disease parent can feel overwhelming—but what if there was a platform designed to make it easier? In this episode of Confessions of a Rare Disease Mama ,
Send us Fan Mail In this episode of Confessions of a Rare Disease Mama , I'm joined by Hilarie Geurink, a registered dietitian with a passion for empowering families to explore real food blended diets for their loved one
Send us Fan Mail In this moving episode of Confessions of a Rare Disease Mama , I sit down with Lauren Williams, a rare disease advocate and one of the driving forces behind the CureGRIN Foundation. Lauren shares her jou
Send us Fan Mail As the new year begins, I’m sharing some personal changes I hope to put into practice in 2025. From doing more gratitude journaling to developing better sleep habits & less doom-scrolling before bed, I’m
Send us Fan Mail In this solo stream of consciousness episode, I reflect on the unique challenges and joys that the holiday season brings for families navigating rare diseases and medical complexities. I share practical
Send us Fan Mail In this deeply personal episode of Confessions of a Rare Disease Mama , I sit down with Ashley Haywood, a devoted mother and passionate advocate for her 8-year-old daughter, Sadie, who is living with San
Send us Fan Mail In this episode of Confessions of a Rare Disease Mama , we dive into the complexities of family transitions with Mary Ann Hughes, a certified Special Needs Divorce Coach. Mary Ann took her own experience
Send us Fan Mail Tune in to this mini episode to learn what my exciting, big announcement is! It's a very special project I've been quietly working on for years & cannot wait to share it with you all! Donate to Hurricane
Send us Fan Mail In this episode I welcome back (for a repeat appearance!) Director of Community Engagement of Global Genes, Mr. Daniel DeFabio. During our conversation, we dive deep into the many facets of advocacy that
Send us Fan Mail Enjoy this solo catch-up episode! Some things I bring up during this episode: -Our kid's starting school (homebound vs. in person) -Roman's upcoming SIXTH birthday & fundraiser -Dealing with ignorant com
Send us Fan Mail I am back this week with a lovely conversation with the wonderful Jessica Patay, Founder & Executive Director of the non profit We Are Brave Together. In this episode we talk about the importance of resp
Send us Fan Mail For our very belated Father's Day episode I have my favorite baby daddy & life partner on, Donald to recap our incredible week at Disney for Stella's Make-A-Wish trip. We talk about some of our favorite
Send us Fan Mail With the passing of Memorial Day weekend, we get to another anniversary of our D-Day. 5 years since our entire lives were flipped upside down. Join me during this mini solo episode as I share some things
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Confessions of a Rare Disease Mama is hosted by Jillian Arnold. The show is categorised under kids (family) and has published 68 episodes.
Confessions of a Rare Disease Mama has published 68 episodes.
Confessions of a Rare Disease Mama regularly covers kids, family, parenting. It sits in the kids category, with a family focus.
Confessions of a Rare Disease Mama is accessible for guests with genuine kids expertise. A personalised, episode-aware pitch will still outperform a generic one every time.
Confessions of a Rare Disease Mama hasn't explicitly signalled guest openness in recent episodes. That doesn't rule out pitching. your hook just needs to be especially compelling and relevant to their recent content.
Episodes of Confessions of a Rare Disease Mama average 41 minutes. a focused format where a clear narrative arc and tight preparation matter most.
Our data rates Confessions of a Rare Disease Mama's guest bar at 80/100 (Premium tier). Established thought leaders with verified media credentials. Sign in to PitchCentric to see how your own Pod Score compares against this show.
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